Jadie Jo's Journey
Donation protected
On February 3, 2018, the Bell family was hit with news that no family ever wants to hear. Their sweet baby Jadie Jo was diagnosed with Vanishing White Matter Disease Leukodystrophy. This is a neurological condition that destroys myelin, the brain's white matter, thus causing the brain to lose its ability to send signals to the rest of the body. Currently, only about 250 people worldwide are known to have VWM disease. VWM is progressive, untreatable, incurable, and terminal.
At this time, the family is only asking for your prayers. However, their financial needs will be great as they try to fight this horrible disease all while trying to work and care for their other children. This family is loved by so many. As friends and family let's all rally behind the Bell family and donate what we can. Any amount will be greatly appreciated!
At this time, the family is only asking for your prayers. However, their financial needs will be great as they try to fight this horrible disease all while trying to work and care for their other children. This family is loved by so many. As friends and family let's all rally behind the Bell family and donate what we can. Any amount will be greatly appreciated!
Organizer and beneficiary
Hayley Tebbs
Organizer
Nephi, UT
Josie Bell
Beneficiary