James & Family Healing

UPDATE 01/17/22: how is it possible to get COVID again after being carful and terrified of the world? Wellll ask my body because we have it again. I’m currently hospitalized for COVID Pneumonia that developed pretty rapidly. Praise God the boys are doing okay and James as well even though he has preemie lungs and development. 

Jesse has it but he is staying tough holding the house together he’s the best dad & husband ❣️  We got it after I didn’t send the boys back to school after winter break but received a warning and sent them only two days and then BAM. Again.  So here I am asking for help we have a nanny who’s been a huge blessing to us Emily and has even helped us during this COVID part 2 ordeal. She’s worth every Penny just jesse needing to slow down for his health and not get burnt out either while sick and get worse :/ 

Prayers always please I know one day this will be our testimony And brings us closer. 

Hi my name is Joyce, (the link below is us on the news)

https://www.nbcdfw.com/news/local/plano-family-spends-thanksgiving-in-hospital-with-4-month-old-who-contracted-rsv/2825670/

UPDATE 12/08/21

Mom is now hospitalized with severe pneumonia…. Boys are with dad as he tries to work and provide. Please pray we need to catch a break…. Smh….

UPDATE 11/29/21 VIA IG:

Our baby is HOME I’d like to thank everyone who prayed, shared our story, kept us going with kind words and checking on us this week we will be seeing 

#1 cardiologist for his heart arrhythmias and a possible link to his “holding breathe spells” 

#2 trying to get a scheduled SIDS test

#3  neurologist for his “holding breathe spells as they considered treating as epilepsy however they would be such small sezuires I’m hesitant to do ANY medications for that as it’s known to change behavior…..

Continued prayers for us as we go into this week that he can remain stable & out of the hospital as well as god lead us in the right direction for his treatment needs 

yesterday poor baby boy was adjusting being back at home & brothers wanted to be allll over him but mom was mean and made them wear masks near him ‍♀️ lol he’s been startled and trying to relax as going into the hospital was a shock for him being poked, woken up, not in his comfort zone, you name it. But he’s getting better he was so happy to be with his toys again though! 

https://gofund.me/87d7da39

If you want to share the gofund me I won’t stop anyone we are currently purchasing the owlett (why on earth they made it nearly $400 will never make sence to me ) 

& also why they make preemie clothes, diapers SOO much more expensive is insane to me as well. I feel these are things that need change parents are already going through so much the last thing should be having their baby early and having to rebuy an entire wardrobe x2 the regular prices. Not to mention how preemies usually have medical issues that will follow. These are the changes and why we all speak so much in it to bring awareness to these tiny but mighty warriors. 

Have a great Monday everyone!

Original post:

 

Over the last year our family has gone through alot of trauma. I had lost our baby boy last year in December 2020. In March of 2021 I found out we were expecting our rainbow baby. I endured many Health complications due to medical mismanagement. I was on Home Health with a picc line but that still did not stop by body from having complications. I had my gallbladder removed, Blood clots, PICC Line infections (one resulting in 28 day stay in hospital due to it causing heart issues as well as I went septic), several admits due to severe dehydration & malnutrition. I have Crohns & Addisons Disease as well.

 

In August of 2021 my kids went to a pedicatric back to school appointment where one received shots. A couple days later he fell ill and i assumed it was due to the shots, until my husband fell ill as well. We did a home test and he came back positive for COVID as well as my kids. He ended up being transported 2 times by ambulance where each time they released him. One night he collapsed and when ambulance took him he had COVID Pneumonia in both lungs and was admitted to COVID unit on high flow oxygen. The following day I was taken by ambulance as well as I went down hill rapidly. With no one to watch our boys my sister flew in from California & one of my husbands sisters came to get them. I was admitted as well and was not doing so well however the OBGYN did not take it serious....A day later during the evening I called my sister VIA facetime showing her I couldnt breathe. Respiratory came in for a regular breathing treatment however when he saw my oxygen at 80% he froze and didnt know what to do "because I was pregant". My sister heard and called the floor nurse and next thing I know Rapid Response was in my room and all I remember is them trying everything to get my oxygen up and being told "Mam'm your going on a ventilator and we are going to need to take your son on via c-section he is not getting oxygen"

 

Our son was born at 29 weeks. I didnt get to meet him until he was three weeks old. Dad was released sooner and was able to after two weeks.

 

Since then we had a extensive NICU stay, specialist appointments, and i have still continued to have health complications resulting me in the hospital and unable to work.
With two other boys my husband working is very limited as well.

 

As of 11/23 James was re-admitted due to RSV. We take every precaution however my oldest picked it up from school and here we are. Due to him having some fainting spells Neuro is also now following James.

 

Honestly we've had a really tough year and prior I worked as a nurse. I have tried to go back to work however I've been let go due to then I end up in the hospital for either my liver levels, blood transfusions, and my husband then has all 3 boys. It would really help our family with specialists, medical bills, medications, everything. I never in my dreams thought of needing to do this...I love helping and giving back this year has just been so much for us anything would help. Thank you for your time I promise I would not ask if we didnt have the year we had. My IG is _joycecardenas if you would like to follow our story and videos. Thank you and god bless.