Amayah Rose Vivas

Sunday November 12th.

Amayah came home today! Just 4 days shy of her 5 months!

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We are elated! she is home with us and her big brother. We know this will be an adjustment. She will continue to drink her bottle and increase her feeds there as well as take gtube feeds, which will include her meds and vitamins.

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In a few days, she must follow up with a pediatrician. & in a month, she will have another MRI to check her brain.

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God has been so good healing her and allowing her to graduate the NICU & we couldn't be more excited. She is brave, strong, & the best little girl we could ask for.

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As she is home, we will navigate her needs, from therapy to follow-ups. We will continue to pray its only improvement from here. Now being local, Javier can continue to do his follow-ups and take care of his health.

we appreciate the encouragement, the prayers, and generous donations through this journey. We are thankful for your generosity that continues to help us pay medical bills, travel, and food.

We are looking forward to enjoying home life as a family of 4!

Tuesday November 7th,2023-

Day 137 Amayah update -

Amayah has been experimenting with bottle feeds very little at a time. However, she is doing so well learning the bottle and tolerating the feeds, so we are going to move her to bottle feeding period and remove the GJ tubes feeds that she was doing .

She will still have a G tube just in case she faces any complications or has strictures later on . She is doing so well, that she may be coming home with us next week .

She will continue to do therapy, move at her pace, and on monday 11/13 will have an EGD to see how well her esophagus is working. We we are so thrilled she can come home after 5 months. We thank you for accompanying us in this long journey and for all your donations, prayers, and support .

We know that we face more learning curves ahead as we introduce her to a new environment, taking care of her tubes and feeding at home while caring for Zayn but we are praying we can adjust to being a complete family of 4 reunited at home.

Medical bills have started pouring in and we know that it's your generosity that has made the financial toll much more tolerable.

We hope to keep sharing positive updates and bring some awareness to esophageal atresia and the Foker process.

Thank you Jesus for answered prayers.

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Saturday October 28th- Amayah Rose turned 19 weeks yesterday. Day #134 of hospital life. She is such a warrior & a fighter.

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The connection surgery was successful. She was woken up from her medically induced coma on Sunday & now has been taken of her meds so she's finally more AWAKE & alert.

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They performed an esophagram which concluded the connection is successful & there were no leaks. She is currently fighting a respiratory infection which was a risk of surgery. & she is still on a GJ feeding tube.

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The goal now is for her infection to clear, & for her to not have reflux. Feeding therapy will begin but it first starts with just taking a pacifier as babies may have aversions and associate something in their mouth as a bad thing.

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For now we praise & Thank God we are here. That the process and surgery have worked and we are closer to her being bottle fed, & being taken home.

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Monday October 16th- 4 months.....

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Today Amayah's 4th surgery & connection surgery was performed.

Thankfully, her esophagus & stomach are now fully connected & there is no more need for repogle.

Now that it's done, she will be medically paralyzed, so she cannot breathe on her own or move or risk anything that will slow down her healing.

After a week of watching her sleep & not being able to hold her, she will undergo Diagnostics to ensure that all connected well & that there are no leaks.

She will still have her feeding tube for a while so they can ensure that she has healed and can digest properly. Then eventually start feeding therapies all while still hospitalized.

We are so thankful we are in this part of the journey..... & praying for strength & endurance to continue.

It's been God & His strength that have gotten us through. It's your prayers, words of encouragement & giving that have helped us make it 4 months into this journey. especially being out of work and being really far from home.

Please pray that she Heals and recovers fully & that all goes according to plan! As she turns 4 months today, we are thankful and elated to know we are on our way to taking her home.

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Monday October 9th, 2023 day #114

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Today is a day of GREAT news. The minimally invasive foker process is working , Amayah’s esophagus is growing! The surgeons believe she just needs one more traction pull before they can do the connection successfully. She got her g tube switched to a g j tube and will be starting on milk feeds tonight after being 8 days NPO. Her next surgery is Friday! Thank you for your prayers and generosity! God is working on her Miracle!

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Monday Oct 2nd, 2023

Day 107 in NICU

& first week complete at John Hopkins.

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Amayah had a gap study last week which showed same vertebral spaces as before. But it did show she qualifies for the minimally invasive Foker process. She will start undergoing that tomorrow. She will be taken in the O.R. where the process will start by putting mechanisms inside her & then go in every 7 days to check the movement of esophagus. This process is done to lengthen & help build connection to stomach.

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She will also have her gtube changed to a j-tube to not interfere with her stomach during the process. She has had a central line put in for meds and fluids & her hemoglobin was low so she has started on weekly iron shots as well.

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This first week was the beginning of the taking turns between parents. Tania stayed at the Ronald Mcdonald house on site & Javier went back to be with Zayn who asks for MA all the time & doesn't want dad out of his sight. This week, they will change with another 2 hour drive back to St.Cloud by Tani & Javier to St.Pete.

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We are so grateful for the outpouring of support & prayers. From donations to encouragement to providing meals or a word of comfort. We just ask you continue to lift her in prayer especially as they start this process. We know God is doing a healing work!

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Friday Sept.22,2023

Amayah Rose is 14 weeks today!

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& we are awaiting Echo results to ensure her heart is still normal & an MRI of her spine that was due at the 3 month mark.

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We have also started the process of transferring her to John Hopkins All Children's Hospital in St.Pete to their E.A.T. department & their surgeon who specializes in her condition. Though it is 2.5 hours from home, we have decided this is the best course of action. Everyone who has had experiences with their kids and esophageal atresia have all recommended the surgeon and team there as a first option. Many kids ended up there after failed processes & surgeries elsewhere.

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Once the transfer is complete, she will undergo the Foker process, which we are praying will be successful & she will heal & recover & be home within a 9 week time frame.

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Javier & Tania have prayerfully made this decision to also split their family. They will take turns staying home with Zayn while one travels to St.Pete with Amayah. Obviously this increases the load, the sense of normalcy for Zayn & the travel expenses. They have inquired about the Ronald Mcdonald house for sleeping accommodations.

This is a huge update & our family is so thankful they sought out options & have had their concerns & questions answered. They need our prayers even more now that Amayah is growing strong & healthy as she undergoes more testing, the process & sedation etc.

Your prayers. Your sharing. Your generosity:: We thank you! We couldn't have made it this far without the support and love of those close & far.

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Please continue to help us fund her medical bills, physical & occupational therapies she will need & all the traveling our family will have to make in the upcoming months.

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Javier is still off work unpaid & facing health issues as his own so lets cover them in prayers of health, recovery & provision!

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Sunday September 17th,2023

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Amayah turned 3 months old yesterday & she's almost weighing 10lbs. We thank God for her growth & thriving even while she awaits surgery.

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Though surgery is tentatively scheduled for 10/3, we have been pointed in the direction of a doctor & hospital in St.Petersburg that we didn't know existed. They have a team and doctors dedicated exclusively to EA/TEF which Amayah has. We had heard of a surgery option but thought it was only available in Boston's Children's hospital.

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please pray we make the right choices for Amayah, her surgery & her healing. Please pray for provision & wisdom for our family during this time. We are thankful for the support you all provide!

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Tuesday September 12,2023

2nd Gap study Update: Day #88

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Amayah's procedure is done, & she is awake & getting her feeds again. Amayah didn’t reach her goal of 2 vertibrial spaces. Her esophagus grew a tad bit but it’s starting to curve away from her stomach so they are stopping the daily dilations. The surgeon discussed 2 potential ways to connect her which involve the stomach or her small intestine. Her surgery to repair her trachea fistula and connect her esophagus is scheduled for 10/3. The surgeons will decide then when they repair the trachea which route to do. Although this is not the news we were hoping to receive today we know that God knows why he does things. Her miracle is in motion! Romans 12:12 ““Be joyful in hope, patient in affliction, faithful in prayer.”

In other news, Dad Javier was scheduled to go back to work on 9/8 but due to his own health issues, the need for splitting themselves between Amayah in the hospital & Zayn at home, & exhausting his family leave, he has decided to take an additional UNPAID month from work. We rejoice in that benefit being approved & are praying for provision during this time.

We thank you for joining us in prayer today & know you will continue to share Amayah's story & pray for her connecting surgery on 10/3. We are praying she will have a healthy life & be home soon after that.

*Big brother Zayn also was able to slightly meet her in the hall as she was wheeled into the O.R.

Friday September 8th, 2023

Amayah Rose is 12 weeks today!

Day #84 of NICU life.

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She is growing, smiling & doing great with physical therapy. She has reached a weight of 9lbs 7oz.

This week, we are asking for prayer for:

the hospital to allow Zayn to meet his little sister, especially before she undergoes general anesthesia again for her gap study on 9/12.

We are praying her gap study goes well & that it shows adequate growth for connecting surgery to be scheduled.

pray for Javier's health

& pray for their marriage, strength & for Amayah to be healthy & home soon.

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Usually, I am the aunt who updates, but today, I want to share what Dad, my brother Javier, has to say! :

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What if I told you that your daily / weekly routine can be changed from day to night. What if you took that routine for granted?

Yes, we found out Tania was high risk when she was 20 weeks pregnant . We went to weekly appointments for 4 months . We were told very different possibilities of Amayah. However, it was for certain that she was going to have Esophageal atresia /TEF. In short, Her esophagus does not connect to her stomach, so she can’t eat through her mouth. She is fed through a G tube( goes through the belly that brings nutrition directly to the stomach).

We prayed and knew God was going to perform a miracle . We had two emergency visits at the hospital, and one of them was when Tania bled a liter of blood (we had to call the ambulance & have a 30-minute ride to the hospital ). And then the third time when doctors decided it was time for Amayah to come out.

Thank God, we knew beforehand about Amayah’s condition, because it could’ve been worse, not knowing and having her inadvertently choke upon feeding.

It was like the 4 months of weekly visits & random stops at the hospital were preparing us for this storm/ war. You think you can prepare yourself for a “storm “ , but you really can’t . You have to go through it, & in it let God sustain you & equip you to get through.

It has been a struggle because Amayah has learned to tongue out her “replogle”. And now the taping on her skin isn’t holding up that great.

Seeing her choke on her saliva a few times during the day is very scary.

We spend half of the day with Zayn before we go to visit Amayah at the hospital. All of this NEW “ Routine” can be MENTALLY & PHYSICALLY exhausting / draining.

I decided to join a facebook group recently that has different testimonies and experiences with people/kids with Ea/TEF . I should’ve been warned before joining, and now I am even more scared of the future. BUT, I know who holds the future .

We are still believing and praying in this miracle for Amayah Rose. Knowing that her story will be completely different .

We’ve had phases where we have even blamed ourselves for what Amayah has. But doctors have told us & reassured us that it was nothing we did to have caused this.

Nurses have recently started to ask us how we’ve coped with this experience. Our answer is prayer.

Knowing everything will “be alright “ (a song by Evan Craft)

Also, reading devotionals through the Bible app has kept us .

"Trust in the LORD with all your heart and lean not on your own understanding;in all your ways, submit to him, and he will make your paths straight." Proverbs 3:5-6

I just felt like this was something I HAD TO PERSONALLY WRITE OUT.

I'm still shocked and in amazement at how everybody has been so kind to us. May God bless and multiply every seed you have sown into my family . I know that this storm is soon to be over, and there will be brighter days in Jesus' name, Amen.

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Update Thursday August 24th

Amayah turns 10 weeks old tomorrow! She turned 2 months old on August 16th. It's been a busy 2 weeks since the last update & her emergency.

She spent lots of time in level 3 NICU to monitor her more. She didn't gain much weight or grow a whole lot more, so for this reason, they have decided to push her next gap study to September 11th. Though this is 6 weeks after the first one, it will give her time to grow & progress.

She is back in Level 2 & in a pod where nurses tend to 4 babies but parents have talked to nurse management & they have decided her nurses should only have 3 babies max due to the level of care she requires. They all have understood parents' concerns and fears. Since moving back to level 2, all nurses have been so caring & accommodating.

Her physical therapists are impressed with how great she moves and pays attention & she is becoming so much more alert.

What to pray for:

⚫️ Her care, we love having compassionate, loving nurses who are aware of her needs, from her suction to her tube & prevent irritation or aspiration.

⚫️ her growth so she can gain adequate weight & for her gap study on September 11th. again, she has to be put under anesthesia, and we are hoping it will be enough for surgeons to want to perform connecting surgery.

⚫️Development as physical therapist work with her to be able to progress with all normal baby milestones.

⚫️her health in general, with cold and flu season that she may stay healthy & strong

⚫️Parents strength as they continue this NICU life for the long haul, that their faith would grow, that their marriage & Zayn would be blessed & that they would not grow weary.

⚫️Joy in all seasons as needs are being met.

thank you so much for partnering with our family in prayers for Amayah, in your generosity & your sharing her story!

Update Friday August 11th

Day # 56

Today, as Amayah turns 8 weeks, she aspirated due to thick secretions and not enough suction. This is the biggest risk she faces as she waits for her surgery. She is totally dependent on her repogle suctioning everything before it gets into her trachea.

Because of this, she was moved from level 2 NICU to a level 3. Her repogle went from her nose back to her mouth so she could have a CPAP machine connected to her nose. The CPAP should help her avoid pneumonia risk associated with aspiration.

Please continue to pray for her. For the right monitoring, medical decisions and for her wellbeing and progress. We need her to stay healthy, grow and avoid any setback. All this as we pray & wait for the next gap study in approximately 3-5 weeks.

Everytime she has a gap study she has general anesthesia, which puts her at a bigger risk for mucus development. After her next gap study, we pray she is ready for connecting surgery and can recover.

Please pray for our warrior princess as she faces a long stay ahead. Please pray for her parents and their travel, their exhaustion, and big brother Zayn who turns 21 months today.

Please continue to send them encouragement. & share Amayah's story to raise awareness for esophageal atresia. & for the generosity to continue to pour in.

The funding helps their medical expenses, meals, gas, & even all the tolls it takes to get to her hospital 45 minutes. It even helps them be abl____e to bless the nurses and docs with coffees and treats to thank them for the care provided.

As we pray for our baby girl, we pray for all those friends, family and strangers who have lifted us up in prayer, given generously and shared her story. thank you so much for every call, text, and encouragement we receive. Through this all we pray God is their strength & that they may continue to look forward to the day Amayah is healed & on her way home!

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Update: Friday August 3rd

Today Amayah is 7 weeks.

Day #49 in the NICU.

& she had her gap study on Tuesday. Doctors were amazed at the progress. Her esophagus & stomach used to be 6 vertebral spaces apart. Now it's only 4. the good news is she made great progress! the other news us she still needs to have that gap shrink by 2 more spaces. When she is at 2 vertebral spaces, they will be able to plan the connecting surgery.

This means she will be in NICU for another 4-6 weeks before another gap study. Gap studies require her being put under general anesthesia and we are thankful our princess warrior did so well. They were also able to change her gtube for feeds into a mickey tube.

The biggest struggle is her repogle tube. without it properly in, or without the proper suction, her oxygen levels get low and she risks aspiration. For this reason we are trying to have the same rotation of nurses who have learned about it and her condition and are more attentive to it. Its been hard to see her struggle.

Javier & Tania want to give thanks to everyone for their giving, & sharing to cover their financial needs: hospital bills, gas for travel, meals when at hospital, and even thank you's for nurses.

But mostly they are thankful for the prayers. For the encouragement and support. All your texts, DMs, & phone calls have been able to cheer them up & strengthen them.

Knowing God cares & people like you too is what they are most thankful for.

Please continue to pray for Amayah, their family, their health, & show them all the support you can. This is a long road, but we look forward to the day we can take Amayah home healed completely.

UPDATE : THURSDAY JULY 28TH

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Amayah turns 6 weeks tomorrow! so Javier & Tania are at day 42 of life in the NICU.

We can speak of God's goodness & how He's been faithful working everything out in Amayah's favor but as an observer, I cannot imagine how difficult & draining it must be.

Javier & Tania are 45 minutes away from the hospital & have Zayn at home to take care of as well. With all their relatives far way, they are thankful that Grandma, Tania's mom is able to help them in this but there's still so many needs.

Amayah's condition is not worsening. She is gaining weight & now has her repogle tube through the nose. Everyday they pray for nurses who are loving, caring & compassionate towards her & her needs.

She had an ultrasound & they ruled out any issues with kidneys or hernia.

She has been cleared from genetic diseases & of spina bifida and we know that's the goodness of God.

Right now, we need prayers! Prayers for her gap study which is technically a surgery as she will be put under general anesthesia on Tuesday August 1st. this will measure the Gap between her esophagus and stomach and let surgeons know if connecting surgery can be done.

If not, Amayah will be in the NICU another 4 weeks at least before they measure again. There was a lot of medical information given to parents today that can overwhelm & stress them out, so please pray for the following things:

*that the gap study will show adequate length for correction surgery on August 1st, God is able

*that Amayah will always have loving, kind and a wise team of surgeons and nurses around her

*that mom & dad are filled with a peace that surpasses all understanding & that they may be upheld by His supernatural strength.

*that the Lord would protect them as they travel each day & that He would meet every need.

*My brother Javier is facing health issues of his own, and we pray for his healing as well.

Please pray for their marriage, their son & the season their family is in right now. Please feel free to encourage them, love on them, give towards their medical bills and expenses or share so that Amayah may be prayed for!

I thank you in advance!

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UPDATE: THURS JULY 20TH

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Amayah turned one month on July 16th! & will be 5 weeks tomorrow. She is now weighing 6lbs 13 Oz.

She was not moved out of the NICU to our relief & continues to be monitored around the clock. Her repogle & suction is super important for her wellbeing, so she does not aspirate.

Every day, we get to know more nurses who are aware of her plan of care & take care of her so well. Yesterday She got upgraded to a big girl crib in the NICU.

On August 1st, she will have a gap study performed in the operating room where they will see how much of her esophagus and stomach have grown. the hope would be enough to be able to perform the connecting surgery.

in the meantime, parents are traveling back and forth to split themselves between Zayn & Amayah. Tania is recovering from her c-section & Javier requested an FMLA to help him tend to his family longer. It is very difficult as all their families live in South Florida.

All the prayers, encouragement, texts, calls, gifts, and donations are helping them get by as they continue this exhausting & financially draining situation. We continue to pray Amayah gets well enough for surgery, recovery & eventually her welcome home no matter how long it takes.

Please also help us pray continuity of care gets approved, as the insurance and hospital maybe out of network soon. We do not want to have to move her & start with a new care team & surgical team.

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Update: Wednesday July 12th

Day #26

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It's been one week since our last update. Amayah will be 4 weeks this Friday. & she is weighing 6lbs 3oz which is good progress.

The good news is her esophagus has been dilated enough to go from 7cm to 11cm. They will follow this up with an x-ray to see how her stomach is expanding. This will determine when connecting surgery or surgeries can be done soon or if we still have to wait a few weeks.

Praise report is that all genetic testing & ultrasound came back NEGATIVE. meaning Amayah seems to be an isolated case of just esophageal atresia & not all the other things that are usually associated with it.

Paternity leave is coming to an end this week, so we are praying his FMLA gets approved so he can still care for his family.

Please pray: Amayah is being moved to a regular room outside of NICU because it's at capacity which means she can meet her big brother Zayn & maybe limited family but this also means less monitoring. She does have a replogle tube with suction that helps no fluids [saliva] get into her trachea as that is what her esophagus is attached to. She is a baby and it can easily come out or lose suction & that's why the NICU is beneficial. This will definitely require us to always have a parent at the hospital since this means no supervision & a private room.

Also insurance is negotiating with hospital & continuity of care was filed so she can continue being treated but this may mean more medical costs, or having to move and start with a new care team at another hospital.

It's a long road & exhausting one but we are thankful for those who have supported our family & have prayed for our baby girl. Please continue praying as we face what's ahead.

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UPDATE: Wednesday July 5th

Amayah is almost 3 weeks and almost 6 lbs as well. This is all good progress for her growth as she needs this before she can have another surgery.

This weekend, grandparents came from South Florida & she met Grandpa for the first time. Other family came & and were able to help with Zayn as we spend time in the hospital.

Amayah had an ultrasound today to rule out Spina bifida & we are still awaiting genetic testing, which can sometimes take a month. She is also on antibiotics to rule out any infection through G Tube. This new picture was also her first time in a onesie which they let us do for her 1st Independence day picture.

Right now we wait. Hopefully surgery can take place within 7-8 weeks. We are praying one surgery is all it takes & that she recovers as soon as possible & that all genetic testing would come back negative.

Dad is supposed to go back to work July 15th as paternity leave comes to an end but will have to file for a family leave due to the care his family requires. We are not sure what Financial toll this will take.

They also received notice that insurance will soon be out of network with our current hospital & this may increase their out of pocket expenses. They were so grateful for the meal train from church but that also has ended.

So please continue to pray, send encouraging words & give if you can to alleviate the stress & toll this long road to recovery can have on this beautiful family. We are forever thankful ❤️

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Since Tuesday, parents noticed Amayah was spitting up a lot. They kept bringing up to doctors about her spitting up and alarms going off.

On thursday afternoon, after so much insisting, the nurse checked on the suction that is to be removing saliva/secretion. She noticed it wasn’t connected well.

She also had some episodes where heart rate dropped dramatically, but because it's not prolonged, they are not too concerned.

This morning, they put in an IV with antibiotic in Amayah to prevent infection in her gtube /stomach .

The surgical team says it looks good, but doctors see some yellowing & are doing it just to make sure Amayah stays healthy.

Life in the NICU, while tending to a toddler at home, has been tiring, & difficult but we are getting through praying, reading devos for NICU parents & thanks to your encouraging words.

please continue to pray that she thrives, grows & stays healthy for when it's surgery time. we are so grateful for the support system we have & the donations that help alleviate the financial toll.

UPDATE: Thursday, June 22nd. No news has meant good news.

So far, all other organs look good & we are awaiting genetic testing results.

She is up to 24ml in milk feeds . & The biggest news is she was stable enough for parents to hold & to be upgraded in the NICU to less critical. Doctors have even started stretching her esophagus, which will prepare it for eventual surgery to connect to her stomach.

parents continue to be grateful for the outpouring of support, encouragement, gifts & donations . God is answering prayers & we now pray she can continue to grow & that only one surgery would be necessary. We also pray that all genetic testing would come back normal!

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UPDATE: Tuesday June 20th, Today Amayah is undergoing testing as they are trying to see if they can find any other defects. However we trust In God and he is healing her as we speak. We know God is placing all the right doctors and nurses to be at her bedside while parents aren’t there.

They didn't see the need to continue pain meds as she is calm & they will be starting (8 ml) breast milk feeds through G tube. After 4 days, she gets her first feed! praise the Lord for this as she needs nourishment to grow. Bilirubin levels are borderline, but that's not overly concerning since she hadnt had food. Her levels should start going down.

She will also undergo genetic testing to rule out chromosomal abnormalities usually associated with her condition. But we have faith, she will have no other issues.

We are thankful for the prayers! We are thankful for the ways God is showing up. we are thankful for your generosity as we face the long road ahead.

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UPDATE: Monday June 19th, Amayah was extubated & is breathing on her own post surgery. This morning, her potassium levels were dangerously high but are now within a normal range. As she recovers from her first surgery, we await the go ahead to start feeding her via G tube. this will help her be nourished and grow for the next surgery. Tania should be discharged today, but faces a longer than usual recovery. This will also start their drives back and forth from St.Cloud to downtown Orlando. Javier & Tania would like everyone to know that despite the mental & physical exhaustion; they are overwhelmed with the amount of prayers & support. They know this is a valley they can overcome! Please continue lifting them up in prayer!

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UPDATE::: Sunday June 18th, Amayah has successfully come out of surgery. It was to explore what type of esophageal atresia she has & to insert a G tube for feeding. She has Type B which is one of the rarest kinds [1%]. Part of her trachea is attached to esophagus. She must grow first in order for them to be able to connect her esophagus to stomach. We are thanking God for the miracle He continues to write out in her story. & for your outpouring of love, support, prayers and encouragement.

AMAYAH: CLOSE TO GOD

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Hi, as most of you know by now Amayah Rose was born June 16th as a preemie and after a very high risk & rough pregnancy for mom Tania. After being born being c-section, the T.E.F. [ tracheoesophageal fistula ] diagnosis was confirmed. She will be undergoing her first surgery tomorrow to insert a g tube for feeding and to create a microstomach.

We are asking for prayers for her surgery, & possible surgeries to follow, for her healing and a full recovery so she can grow up healthy & tell of this story as her testimony.

Amayah is receiving the best care in Orlando where she is expected to be for the next few months. Until then, she cannot meet big brother or most of her family.

Not only am I asking for your prayers, but If you feel led or compelled to give: please do. Tania faces a long recovery after a high risk pregnancy and surgery. Javier will be taking a family leave to take care of his family. As most of you all know: they have no other family that lives in Orlando and they are parents to 18 month old Zayn. grandparents are in town to help much as they can but the amount of time out of work and travel to and from will take a toll.

we are asking to relieve their financial burden of not working, of travel to and from the hospital that is far from home, the meals, the mounting medical bills as they seek the best care possible: if you can, please give here.

if you can't just share and pray that Amayah, my niece will soon be healthy enough to go home & be held and loved and to be healed 100%.