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Jaycens intense second battle vs leukemia

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Due to jaycens health and the stress of it all and  I know it's 1000 times harder on him , but it's very hard on me and Joni too and now due to covid like others we can't work for a while. Unfortunately in our household when it rains like most others it pours. We have been blessed at the help that we have received and support and I thank God every day for our support group. I will also be starting a go fund me page for people who don't want to bid on chair. But it's Marvel Avengers ands is handmade wood work it's absolutely beautiful. Unfortunately covid messed up the auction we had planned. So in comments people can make offers and everyone can share you can bid in a comment or pm me or my wife Joni. Update on Jaycen he is in remission but will continue chemotherapy until Jan 2022. Currently we are in and almost done delayed intensification therapy which is rough it's made to drop your blood counts low. He will need a blood transfusion at end of month. This phase is supposed to be all inpatient but on April 2nd he went to Wolfsons in Jax with Joni. I was home watching Justin due to strict one parent at a time rules and Justin is home from school for year due to covid. Well I came in and no nurse had any masks,two didn't have gloves and being in the medical field myself I made them all get away from my boy and I did his treatments .I asked to talk to head nurse who was already my nurse and she told me masks are not required. I replied get me a doctor or administrator .I got both and he stated no covid patients were infected on that floor so no masks or booties were needed .  We did argue about how covid is spread he said none of his nurses have fevers or coughs. I replied with do you even know about this virus ??? it could be on your shoe and you could bring it in this whole building. I have taken him back once for outpatient chemo and had to tell a nurse again to wear a mask. I've always been his advocate, but this time it  took a toll on me . Every visit was a issue (arguing to get a infected port out with a fungal infection of a 80% mortality rating in adults) . Since November all me and Joni's energy has gone towards Jaycen and of course our other wonderful son Justin Taylor who does support his brother and hold him when he is sick. The worst thing about your kid being sick is having to worry about bills or needs. Jaycen drinks over 100$ a week in pediasure bc he now has sores in his mouth that causes him to not want to eat his favorite foods ! ( an unfortunate side effect of this chemo) Medicaid doesn't cover everything. It's been the most difficult time of my life and I never thought I'd be making another go fund me for Jaycen or have gone through all we have , but we are still strong #Jaycenstrong #Palimenostrong #Leukemiaawarness #family #together wearestronger #childhoodcancer.  Please help us reach our goal we got all our tax money taken. We are constantly fighting the state for benefits and help and it doesn't come or doesn't come close to when we need it. I hate asking for help, but this is for Jaycen !  his smile brightens the whole world !teamjaycen #leukemiaawarness #betterhealthcare
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Donations 

  • Nicole Sadler
    • $50
    • 4 yrs
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Fundraising team: Jaycen strong (2)

Joni Marie Sabo-palimeno
Organizer
St. Marys, GA
Joey Palimeno
Team member

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