Jay's Medical Flight

Hi, my name is Kari and I’m fundraising for my dear friends Jen & Charlie Miller. On June 1, 2021, they welcomed their son Thomas Joseph “Jay” Miller into the world.   Jay was diagnosed with Jeune Syndrome, a very rare form of dwarfism. One complication of Jeune Syndrome is a narrow rib cage, too narrow to accommodate typical breathing. In addition, Jay was born with other respiratory and gastrointestinal complications.  During his first year of life he had several surgeries at UCLA Medical Center. In July 2022, Jay had the first of many surgeries to expand his rib cage. Surgeons at the Children's Hospital of Philadelphia inserted titanium rods into his rib cage to begin the expansion process. He had his second surgery December 2022.  Jay will have surgeries in Philadelphia 2-3 times a year (until he is a pre-teen) to gradually expand the rods. Jay’s insurance company has denied (for the second time) to cover his medical flight.  The current flight his parents are trying to contract, is asking for a $39,000 retainer. If you can offer them any financial support, I know that they will be so appreciative.  Prayers are greatly needed as well.