Jeff's Crohns Support & Help
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Hi, this is Jeff and I'm Jeff's Mom. Jeff is a very sick young man that needs lots of support and love. As his Mom I am trying so hard to care for him and give him what he needs. But now, it's become the most difficult thing that I've ever been challenged to do. Jeff has been sick now for most of his lifetime. When he was just eight years old another child damaged his eye leaving him blind in the right eye. He was diagnosed with Hodgkin's Lymphoma at the age of 21, and then after going into remission he started having countless battles with abdominal issues, resulting in several surgeries and then being diagnosed with Crohns. Crohns has been the biggest battle yet. He has suffered with Crohns for years and has not been able to take the medicine that controls Crohns because it would increase his chances of having cancer once again.
Therefore, he went several years without medicines to control it. Now, the situation is dire. He has been in and out of hospitals the last few years and just this year he has been hospitalized six times since July of 2016. The Crohns started attacking his body with abscesses that caused a tailbone infection that will not heal. He has been on 10 weeks of IV antibiotics and now he has a 24 hour continuous antibiotic IV. He also has a drain in his rectum (sorry, is this is too much info) that keeps further infection from occuring. This is very, very painful.
He is in relentless pain all day and the only thing that can be done is to surgically remove the tailbone. He also suffers from anxiety and depression, which kind of goes along with these illnesses.
Once the infected bone is removed he will be put on biologics to help control the Crohns. Biologics, which may or may not give him cancer, but he now has no option. The doctors told him ..."you need to decide whether or not to live with cronic Crohns that's out of control, or take your chances on getting cancer." Jeff has decided that he will take his chances with the biologics and the increased risk of cancer.
Right now his home care infusions, medicines and health care are costing thousands of dollars. We also travel every week three hours there and three hours home to the Medical University of South Carolina, where he receives his care. When we travel there I make the back seat into a bed with pillows and cushions to try and keep him comfortable as possible while making the trip.
Jeff isn't able to work and his Father and I have been his sole support. We are both retired and it's getting harder to keep up with all of his medical costs and needs, but we do our best.
We are reaching out to everyone to help us pay for Jeff's medicines that are currently running around $800.00 per month. The cost will increase when he starts the biologics. The per injection cost will be anywhere from $1,200 to $2,500. He will have to receive these injections for the rest of his life.
As his Mom I can't begin to tell you how much he suffers daily. His life has been taken away from him and he has been reduced to laying on his side in bed or on the sofa. The drain and the tailbone infection is so painful that he cannot drive, he cannot go out to eat and he cannot do any of the things that he loves.
Jeff loves music and he is a computer "gamer." He hasn't been able to sit in front of his computer for more than eight months. He is also a computer specialists and hasn't been able to work from home.
Jeff's journey is going to be a long and rough one and this is why I am reaching out to ask for help. We have always been a family that never asks for help but now his needs are beyond our capabilities.
There is also the toll that Jeff's illness has taken on our family. We are trying our best to support him and take care of him and we do this through the help and support of friends and family. Our "new normal" in our home at this time is one of working hard to keep him comfortable and getting him the health care he needs.
We are so thankful to everyone who reads this and to everyone who says a prayer for Jeff and our family.
God Bless You.
Therefore, he went several years without medicines to control it. Now, the situation is dire. He has been in and out of hospitals the last few years and just this year he has been hospitalized six times since July of 2016. The Crohns started attacking his body with abscesses that caused a tailbone infection that will not heal. He has been on 10 weeks of IV antibiotics and now he has a 24 hour continuous antibiotic IV. He also has a drain in his rectum (sorry, is this is too much info) that keeps further infection from occuring. This is very, very painful.
He is in relentless pain all day and the only thing that can be done is to surgically remove the tailbone. He also suffers from anxiety and depression, which kind of goes along with these illnesses.
Once the infected bone is removed he will be put on biologics to help control the Crohns. Biologics, which may or may not give him cancer, but he now has no option. The doctors told him ..."you need to decide whether or not to live with cronic Crohns that's out of control, or take your chances on getting cancer." Jeff has decided that he will take his chances with the biologics and the increased risk of cancer.
Right now his home care infusions, medicines and health care are costing thousands of dollars. We also travel every week three hours there and three hours home to the Medical University of South Carolina, where he receives his care. When we travel there I make the back seat into a bed with pillows and cushions to try and keep him comfortable as possible while making the trip.
Jeff isn't able to work and his Father and I have been his sole support. We are both retired and it's getting harder to keep up with all of his medical costs and needs, but we do our best.
We are reaching out to everyone to help us pay for Jeff's medicines that are currently running around $800.00 per month. The cost will increase when he starts the biologics. The per injection cost will be anywhere from $1,200 to $2,500. He will have to receive these injections for the rest of his life.
As his Mom I can't begin to tell you how much he suffers daily. His life has been taken away from him and he has been reduced to laying on his side in bed or on the sofa. The drain and the tailbone infection is so painful that he cannot drive, he cannot go out to eat and he cannot do any of the things that he loves.
Jeff loves music and he is a computer "gamer." He hasn't been able to sit in front of his computer for more than eight months. He is also a computer specialists and hasn't been able to work from home.
Jeff's journey is going to be a long and rough one and this is why I am reaching out to ask for help. We have always been a family that never asks for help but now his needs are beyond our capabilities.
There is also the toll that Jeff's illness has taken on our family. We are trying our best to support him and take care of him and we do this through the help and support of friends and family. Our "new normal" in our home at this time is one of working hard to keep him comfortable and getting him the health care he needs.
We are so thankful to everyone who reads this and to everyone who says a prayer for Jeff and our family.
God Bless You.
Organizer and beneficiary
Diana Miller Wise
Organizer
Carolina Shores, NC
Jeffrey Wise
Beneficiary