Jenny & Evan Ng
Donation protected
I set this fundraiser up to raise money for my daughter (Jenny) and grandson (Evan).
Their Story:
Evan (22 months old), was recently diagnosed with Foxg1 syndrome. Foxg1 syndrome is a rare genetic disorder that causes neurological and motor developmental delays. His head size development is delayed as well (microcephalic). He is now under the care of a Neurologist at Duke (Dr. Zafar Mohammad).
Evan has also been suffering from cluster seizures and has had them every month since February 2019. The most recent hospitalization was 3/3/2020. Each time he's had a seizure, he's been admitted to the PICU at Duke, due to the severity. He has been prescribed many different anti-seizure medications but he struggles with taking them. Therefore, it was decided to insert a G-tube in order to give him his meds. They've done testing, including a spinal tap, urinary culture and blood culture, but the cause of the seizures has yet to be pinpointed
Evan will need therapies PT/OT/ST twice a week to catch up his development. He hasn't been able to walk, crawl, sit very well or eat independently. Due to his medical condition, Jenny has exhausted all of her FMLA and ended up taking personal leave without pay to take care of Evan. Jenny says she will always stay positive and pray for god to protect Evan, as well as give them the strength and patience to get through this difficult time.
Their Story:
Evan (22 months old), was recently diagnosed with Foxg1 syndrome. Foxg1 syndrome is a rare genetic disorder that causes neurological and motor developmental delays. His head size development is delayed as well (microcephalic). He is now under the care of a Neurologist at Duke (Dr. Zafar Mohammad).
Evan has also been suffering from cluster seizures and has had them every month since February 2019. The most recent hospitalization was 3/3/2020. Each time he's had a seizure, he's been admitted to the PICU at Duke, due to the severity. He has been prescribed many different anti-seizure medications but he struggles with taking them. Therefore, it was decided to insert a G-tube in order to give him his meds. They've done testing, including a spinal tap, urinary culture and blood culture, but the cause of the seizures has yet to be pinpointed
Evan will need therapies PT/OT/ST twice a week to catch up his development. He hasn't been able to walk, crawl, sit very well or eat independently. Due to his medical condition, Jenny has exhausted all of her FMLA and ended up taking personal leave without pay to take care of Evan. Jenny says she will always stay positive and pray for god to protect Evan, as well as give them the strength and patience to get through this difficult time.
Organizer
Irene Ng
Organizer
Morrisville, NC