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Willison Foundation for MS Research

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I've had multiple sclerosis (MS) for 20 years, but from the outside one would never know.  At 20 years most of us are non-ambulatory, but my quality of life vastly improved as I researched, developed and employed a methodical treatment that induced remission, stopped disease progression and remyelinated lesions on my brain.   Overcoming severe disability drove me go back to school and study molecular biology to determine if this treatment can also help my fellow MS sufferers. With myself as the first case study and massive amounts of data obtained from my research in the university and animal studies over the past 8 years, I can finally declare, YES! 

     However, because of the pandemic, my research was hindered and I was denied access to the lab.  So I wrote and defended my masters thesis and graduated in December 2020 anyhow, without being able to complete my lab work.  There is still so much molecular work to do from tissue samples of my latest experiment!  The experiments produced highly significant results across several areas measured.  Most importantly, the animals with EAE (the mouse version of MS) who received my treatment experienced delayed disease onset, decreased disability, and total remission through the end of the study.   These precious tissues contain answers that need to be uncovered and published for the world to understand... answers that could lead to us actually finding the root cause of MS... answers that could finally lead to studying the cure for MS.   Also, this treatment has shown such strong anti-inflammatory and immune-regulatory properties, it can possibly be used to prevent and/or treat COVID-19!  

      My research has grown to the point where it is bigger than what I can handle by myself and I need help!  Aside from needing to complete molecular work, there are research collaborations with other universities in-progress, tons of data to analyze, several manuscripts to write and publish, and so many more research questions to address in experiments.  I am also pursuing patent and intellectual property rights for my work.  My goal is to continue developing this treatment into a pharmaceutical or nutraceutical so that my friends with MS who are non-ambulatory can have access to a medication that addresses the root cause of the disease and does not have negative side effects.  There is much room for improvement with the current meds on the market for MS because they focus on a single-target mechanism of action.  My unique approach to managing MS focuses on regulating systemic malfunctions.  

      Another unique thing about me is that I speak several languages.  I'm so excited it's finally time to use my languages for good - to unite the MS community at the global level!  While the Willison Foundation is primarily for research and treatment development, the Global MS Society is to help people with MS get the support they need to live a better quality of life, particularly necessities that insurance doesn't cover.  I'm fiercely devoted to find my friends with MS, figure out which ones this treatment can help, and start actually helping them with their specific physical needs as we work towards learning the cause and developing the cure.  I'm managing and overcoming this disease, and I want to help others do the same.   

Where does the name "Willison Foundation" come from? 
My name is Jenny Willis.  I have RRMS (relapsing-remitting MS).
My best friend with MS is Christine Wilson. She has PPMS (primary progressive MS).
We combined our names to form "Willison," because together, we are stronger.

     Please support my efforts to continue studying this treatment by funding the Willison Foundation for MS research.  As the organization grows, the Willison Foundation will meet additional needs in the MS community where support is lacking.   I've just started this business and with goals like these, I need funding for literally everything.  My family can't support me researching on a volunteer basis any longer, and it's been my dream for more than 10 years to do this full time and finally begin to really make a difference in the world of MS.   I need funding for administrative duties, research facilities, lab supplies, reagents, and also to hire a team of researchers and staff to help me.   

        With goals like these, I'm also working on writing grants for research funding, but private and corporate sponsors are needed.  If you feel inspired by my story, have information to share, feel led to help, or know someone who can guide me, please pass this information along.  I have just begun to develop the websites, create content for my YouTube channel, Patreon, and research blog,  so everything is currently under construction.  As a teaser, I am releasing an introductory video from my YouTube Channel, The MS Experience.  Once enough content has been generated, I will announce a launch party for everything!  I will be posting regular updates about what your support is helping to accomplish, and in the meantime, feel free to contact me.  

Thank you!

Your Friend with MS,
Jenny Willis

Willison Foundation  
 www.willisonfoundation.com  

Global MS Society  (*in-progress)
[email redacted]
[email redacted].edu

YouTube Channel: The MS Experience (*in-progress at Paradise Studios)
(724) [phone redacted]

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Donations 

  • Anonymous
    • $850
    • 7 mos
  • Anonymous
    • $500
    • 9 mos
  • Anonymous
    • $500
    • 9 mos
  • Kathryn Piper
    • $30
    • 2 yrs
  • Anna Willis
    • $25
    • 2 yrs
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Organizer

Jenny Reynolds Willis
Organizer
Saltsburg, PA

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