Joey’s Warrior Fund!

Hi there!

This little chap you see here is Joey, a courageous little 5yr old who has dealt with more in his 5yrs than most do in a lifetime.

Joey is a little warrior and he and his family could do with a little bit of support right now because in a couple of weeks Joey is off to Great Ormand Street hospital for what will hopefully be a life changing operation.

Joey was born with situs inversus with Dextra Cardia meaning his organs are on the opposite side of where they are meant to be. Along with this Joey also has congenital scoliosis which needs regular appointments at outpatients as some of his vertebrae aren’t formed properly and some are missing. Unfortunately this isn’t the only issue ongoing for Joey. For a long time his parents have pushed for more answers regarding Joeys stomach issues and despite many scans, tests and procedures they were either told everything was fine or had been misdiagnosed. This problem has lead to Joey eventually only being able to eat very little and become malnourished to the point of needing a feeding tube running from his nose to his stomach to make sure Joey gets the nutrition that he needs as investigations could find no structural cause. Thankfully Joey got a referral to GOSH who within half a day discovered that Joey has a Recto-Urethral Fistula caused by a very rare anomaly called Bowel Duplication meaning he has TWO large intestines one of which is connected to his Urethra and needs extensive reconstructive surgery to remove as much of the colon as possible. As you can imagine this is a major surgery and Joey will be on a high dependency ward for quite a while. In turn this means a lengthy stay in London for Joey and his parents and a lot of trips from Brecon to London for follow up appointments and further procedures.

Joey’s parents and family all worked tirelessly to get Joey to this point where he can be helped so now it’s time that maybe we can help them by providing a bit of support towards transport, accommodation, equipment and any further treatment he may need on his path to recovery.

At this point any donation big or small makes a huge difference to Joey and his family.

Thank you for taking the time to read this!