Join Reagan's Journey to the MPS conference and Disney World

Reagan is a 9 year old little girl with a terminal genetic syndrome called Sanfilippo Syndrome. It’s compared to a version of childhood dementia because the effects are so similar. She eventually she will lose all her abilities and unfortunately pass away in her mid to late teens.

We as a family have an opportunity to go to Orlando in December and attend the National MPS conference. This is where we get to be with other families that are just like Reagan. Families come from all over even some of our good friends from Australia!

We also want to go to Disney a few days and we are trying to budget for it all. Disney is one of Reagan’s favorite places. She loves watching the parades, meeting her favorite princesses and riding the rides especially Frozen. We unfortunately don’t know how much longer she will be able to enjoy Disney the way she does now with the fact that Sanfilippo syndrome will continue to take her abilities so we want to go all out this trip! We are doing this fundraiser to help us give Reagan the best trip possible.