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Join The Fight For Maria’s Life #DV8ForLife

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I have the worlds top ten rarest diseases, and the most painful diseases known to mankind...I have Durcums disease (DD) Durcum’s disease is an extremely rare and painful disease that cause tumours to grow through the body. Not much is known about Durcums disease and there is only one specialist who lives in America and her waiting list is years long - The costs associated with Durcums disease is astronomical, I require a team of specialist, modifications to my living spaces as I don’t own my own home, as well as equipment and much more. Durcums disease is a progressive disease and there’s no cure! I am bedridden and wheelchair bound, I cannot even hug my family as the tumours; thought to be a connective tissue disorder - wrap around neves and are extremely painful! Imagine not being to hold or hug your baby or hug your mother?! 95.5 % of Doctors have never even heard of Durcums disease, let alone know how to treat it - most often they dismiss you as either a drug addict or write you off as having a phycological problem rather than a physical problem... Please help me raise desperately needed funds for urgently needed treatments and to help me raise awareness and my hope is to eventually raise enough money to help raise awareness for doctors and patients who may not know what they have - and spare them years of suffering and confusion... I would love to start a foundation to help raise money for research and one day a cure! At the moment there’s no research being done and very limited information and the information on the internet is actually misleading and hasn’t been updated yet, that’s how badly there needs to be awareness about this horrible debilitating painful diseases, that causes so many other complications such as blood clots as I also have, it is progressive and treatment expensive and tumours grow everywhere and will grow rapidly and keep growing and even with tumours being cut out they grow back... My first goal is to be able to get help, and to get treatment and help educate others and help others - and I really want to be able to hug my family and friends, I have so much I want to do and accomplish, I want to live my life and not just be alive - please help me make a difference in not just my own life, but a difference in the world and you can do that by donating or - by simply sharing - it is free, quick, and easy but more importantly it really helps! Thank you very much for your time - I will leave as much information as I can and I will link my social media information so that you can learn more about me and my situation - and hopefully raise awareness as I am unable to get help from any of my local doctors or from the government or hospital - please help me make a change so that no one else will have to go through what I am and have been put through... Thank you! Sincerely, Marija Cairns. You can find me on most social media platforms @DV869R where I will be posting and sharing links and information regularly - please subscribe and share, it really does make a difference!

Organizer

Marija Cairns
Organizer
Dunlop, ACT

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