Jonah Gray’s Genetic Testing

Since Jonah was born, Doctors have said he has several “abnormalities” and recommended we see a genetic specialist. At 8 months old, we were finally able to get him to be seen by a specialist. The doctor said he will need extensive testing to figure out what is going on with him. He said he isn’t sure what it could be but he has a few ideas, therefore he will need a ton of blood tests, urine tests and Xrays. That is just for the initial testing, let alone any treatments he may need once diagnosed. If the initial testing doesn’t give us any answers, we will need more tests as well. Unfortunately, our insurance will not cover the entire cost of all of his testing and we cannot afford any tests at this time. We are struggling just to pay rent, bills and putfood on the table right now. 

After sharing his story on social media, SO many people requested I make a go fund me for 
Jonah. I feel absolutely terrible asking for money from anyone, but I just want some answers for my sweet boy. 

For anyone wondering what his abnormalities are here is a list of his symptoms:

- Abnormally large Fontenelle (soft spot) that is not closing. At 8 months old, the fontanelle should be almost entirely closed. Jonah’s is VERY large and seems to be growing with his head.

- He has several fingers that are in a Permanent bent position. He can not straighten them out on his own. This may cause more issues when he is mastering more fine motor skills. 

- Short hands and fingers

- He has an underdeveloped jaw that is impacting his ability to eat solid foods. 

- Short stature (he is under the 1st percentile for height in babies his age)

- 12th percentile for head circumference and weight in babies his age. Essentially his is very small, he’s growing, but very slowly. 

- Sacral dimple (dimple at the base of his spine)

-Simian/palmar crease on both hands

- wide set eyes

- low set ears

- flat nasal bridge

Thank you so much♥️