Joscelyn’s fight against DIPG

Joscelyn Rose, my 13 year old daughter was diagnosed with a rare, aggressive brain tumour this year in May of 2023.

DIPG (Diffuse Intrinsic Pontine Glioma), spares no child with 100% of diagnosed children dying. Only 20 children a year in Australia are given this diagnosis. I refuse to let my child, my best friend, become a statistic.

There are many people in the community asking how they can help and what they can do for us and it’s been so incredible to have everybody come together to help us in any way they can manage. We’ve had a fundraising day which was a beautiful success, but there have still been many people who weren’t able to make it along on the day, who are asking if they can donate. So I’ve decided a Go Fund Me is the easiest way. Every little bit helps. Every single cent means the world to us, and just makes this nightmare a little bit easier. We’re so grateful to everybody who is able to help us.

Joscelyn’s wish… she wants a farm buggy! Something with a bit of speed and thrill (with a roll cage of course). To be able to jump in it and fly through the paddock, clear her mind and maybe pick her brother up from the bus in the afternoon.

She also wants to be able to go to a health retreat in the mountains in NSW. This costs a little over $5000 for a 7 day stay, involving specialised consultations with a health practitioner, cancer meal plans, meditation, and everything she needs to help her body fight this. On top of that, all medication, appointments, tests, supplements and things to pay for, add up very quickly.

Our lives changed completely the night of the 24th of May when we received the heartbreaking news that our beautiful Jos girl has a DIPG, a deadly, inoperable brain tumour/cancer.

She’s a fighter though. ❤️‍As tough as they come. And no doctor or tumour is going to dictate what happens with her life. She’s got that spark and determination to beat the thing they say is unbeatable. And I won’t stop until I find an answer for her.

They say this is the most rare, deadly childhood disease, but try and tell that to a mother who’s whole life is her children.

‘A mothers love for her child is like nothing else in the world. It knows no law, no pity. It dares all things and crushes down remorselessly all that stands in its path’.

No fallen eyelash has gone un-wished upon, no lucky penny left on the ground. I’m doing everything possible to prove everybody wrong and show the world that DIPG can be beaten.

And all in the hopes too, that future DIPG children can beat this, just like I know Jos will.