Julia - uniqe baby - wee fighter

Julcia - a beloved premature baby - ran into this world so quickly, wanting to see her parents and older brother.

Unfortunately, she had a very difficult beginning for her - Julia suffers from a rare condition, trisomy of chromosome 7 - this means having an extra copy of the genetic material (genetic mutation).

This involves airway obstruction (Julia is supported with oxygen during the day and sleeps with a CPAP mask at night) and the Recommendation for feeding through a NG tube.

Julia is 15months old now.

Julia also has a developmental dysfunction in the motor area - it is much more difficult for her to perform motor activities - turning over on her tummy, supporting herself and even sitting up.

But she fighting. Every single rehabilitation She gives her all

Julia is under the care of many specialties with her problems:

* Geneticist(rare genetic condition— unbalanced translocation between Chromosome 7 and 9)

* Respiratory team(bronchomalacia)

* ENT (narrow airways)

*Neurologist(Myoclonic seizures)

* Neurosurgeon(macrocephaly with Ventriculomegalia)

* Cardiologist (Cardiac anomaly - ventricular hypertrophy and small interatrial communication with bidirectional shunt)

* Cleft team(Julia have cleft palate - she is a waiting for surgery)

Julia as well is under Care of:

*Ocupation terapist

*Audiologist

*Optomologist

*Cleft dentist

*Speech & Language terapist

*Physioterapist

*Dietetican

Last year was very hard for Julia and her family, she spent half a year in hospital (intensive care six times - once she was intubated and in a regular ward several times) due to viral infections, while having breathing problems, which meant she could not develop like her peers.

Unfortunately, there is no single method of prevention for Julcia's condition - her parents do everything they can to individually adapt the treatment to their daughter's case.

Julka has a long road ahead of her. Currently, expensive rehabilitation care is needed - only professional adaptation of individual plans to Julka's age and health condition can give her a chance to cope with other ailments - and such rehabilitation costs money.

Julka is a fighter - who needs help.

She need money for rehabilitation and

Special equipment such as an exercise roller and wedge, block, compression vest, etc.

Julia also started going to an osteopath to reduce muscle tension.

But despite many health problems, Julia is a cheerful child

Donate money to Julka. Share your heart and I promise that goodness will come back to you

Julia's mom