Jumelles zaineb et yasmin Epidermolyse 21622020399

My story began in 2021, i got the chance to have twin baby girls Zainab and Yasmine.

Who soon were diagnosed with dystrophic epidermolysis bullosa (DEB)

Caused by skin pigmentation limitation leading to general body weakness burns number of rare genetic conditions which cause the skin to blister and shear in response to minimal friction and trauma..

We heard of new gene therapy from stanford university lab (http://med.stanford.edu/news/all-news/2022/12/epidermolysis-bullosa-gel.html)that’s developed by a startup called Krystal https://www.vyjuvek.com/about-vyjuvek/

The medicine called vyjuvek is very expensive and we do t have American health insurance because we live in Sfax Tunisia. Please kindly donate to hopefully we can figure out a way to have the girls seen by a doctor in USA and buy them the medicine. Jazakum allahu khair

Whatsapp # of Mohamed the father of the kids :+216 22020399