Junior's Million Dollar Miracle

Hello everyone! Just here to share our journey that's been very changing and challenging since Jan 9th 2021. Seem like the days and nights wouldn't end for you to make your arrival and to see your wonderful parents standing there waiting to greet you with love and joy, but something wasn't right. We didn't hear our baby cry, we didn't see our Jr moving much and somewhat unresponsive. Not even 24 hours later we are sent to another hospital where doctors are telling us that our son has low muscle tone (hypotonia) with no clear reason as to what is causing it! The muscle weakness caused our sons airway to collapse and eventually he needed a nose cannula until that wasn't giving him the pressure support he needed to keep his lungs open and was then emergency intubated! He was intubated (tube going through the mouth into the airway and hooked to a vent) for 2 months and within those 2 months we dealt with so much chaos! We were transferred to another hospital! We hoped and prayed that the bigger he got he would no longer need the tube but after an airway evaluation in the OR, we found out that our son needed a tracheostomy in order to get the long term pressure support that he needed! Us being first time parents, this hit us hard! All the advice we were given to help with our parenting was NOTHING compared to our situation! We weren't stumped over what outfit he was gonna wear for the day or making the hard decision of who is going to be his pediatrician, no, we are making life threatening decisions! The past 4 months of our sons life has been spent in the nicu being pricked and tested for some kind of diagnosis or answer and still no answer! We have been able to be by our son's side while he fights and we are so grateful and blessed for that. With no diagnosis, it breaks our hearts for our son but we have been training and learning everything we can about his trach and therapies so that we can bring our baby home but unfortunately he's still not stable. By the grace of God we were approached by a neurologist who believes that our son has a rare type of SMA ( Spinal muscular atrophy) which will get worse over time with a life expectancy of 2 years old! and wants to treat it immediately so that our son has a fighting chance at a healthy life! The sooner we treat him for the SMA, the lower the chances are of regression! We have a long exspensive road of treatments ahead of us; gene therapy which after all treatments is a total of 2 million dollars! along with needing occupational, physical, and speech therapy, supplies for his trach cares, modified equipment, and in-home nursing care. As parents it is devastating knowing that there is a cure out there and that we may not be able to afford it for our Cameron Jr. We are asking our community, family and friends and everyone willing to help donate or share our page as every share and donation will make a difference and will bring baby Cameron Jr that much closer to this life saving medication he desperately needs. We just want to give our son the best opportunity and to finally take him home where we can live out our lives as a happy family!