Just a determined family asking for help!
Donation protected
Well… here I am…..
I truly wish I was not in this situation and just had a healthy son. But, I was chosen to be Nolan’s mom! I love him more than anything! It’s hard for me to put this out there for the world to see ,not because I’m ashamed, but because it makes it a reality. I’m just a parent trying todo everything I can to give my little boy a future he deserves. Right now Nolan may just look like a normal four year old but he has obstacles a lot of kids do not. He was diagnosed with a serious rare disease called Duchennes Muscular dystrophy. It affects 1 in 3500 boys and eats away at their muscle because the lack of dystrophin. And eventually they end up wheel chair bound and then develop heart issues. And, most pass away at an early age. Pharmaceuticals companies have been researching rare diseases for decades and are making lead ways more and more. Even with good insurance ,which we have ,these medicines and therapies can be very costly. I want to see Nolan be able to drive a car, goto school dances , graduate high school , goto college if he wants to and have a family of his own one day. He deserves a fulfilled life! Please share or donate ! And, thank you to those who are continuously praying for our family, donated to our fundraiser, and those who shared our story!
Organizer
Carley Myers
Organizer
Beaufort, SC