Support Kait’s fight with vEDS

“My diagnosis has changed. It’s now a life threatening condition and time is running out”

Vascular Ehlers Danlos Syndrome (vEDS) is a hereditary condition that is caused by defects in a protein called collagen. It is the most severe form of Ehlers Danlos syndrome, with life threatening complications due to fragile arteries, muscles and internal organs. Up to 80% of patients have a major event happen by the age of 40.

The median life expectancy of a person with vEDS is 48 years old.

With vEDS being so widely unknown still, there are only a handful of specialists within the United States. Kaity needs extensive testing done on all major arteries and organs to Identify the areas of concern. And to keep monitoring such areas for the rest of her life. Their current concern is her subclavian artery being pinched by her hypermobile joints.

Kaity will be traveling to UTSouthWestern- Dallas, Texas. UT is facilitated with a team of vascular surgeons and internal medicine experts that specialize in Ehlers Danlos Syndrome.

Kait is searching for any and all help she can get. To cover any out of state costs, copays and other medical expenses.

“To be completely honest, my disability case has been in review for over two years, which has left me with very little monetary help from the state, barely scraping by; not to mention with a vehicle that starts only half the time, that I need to get me to appointments. Again, with all honesty, this diagnosis is an emergency and I need to get there as soon as possible. I HATE asking for help, but unfortunately I have no choice. Anything you could consider donating, I would be extremely grateful for. Even just helping spread awareness is more than helpful.

Thank you for taking the time to read.”