Katie’s fight against Granulomatosis polyangiitis…

Hello everyone our names are Tara & Sonia and we have come together to try our best to support, fundraise and research alternative medicines out there to give our very dear friend Katie a chance at life again while living with an incurable auto immune disease that is life limiting and taking everything away from her.

Katie was diagnosed with this rare disease called Granulomatosis and polyangitis in ‘ September 2022‘ after going 9 months undiagnosed causing the disease to progress fast! This is a rare auto immune disease that we hadn’t even heard of but the outcome has been devastating and life changing for Katie. The only treatment available for this is chemotherapy which Katie has been getting but so far has not been successful, she has monthly infusions also and is on a lot of pain medication which to be honest isn’t helping the pain anymore.

This all started in Katie’s nose and has ate away at her septum and daily she blows cartilage out her nose and it’s now totally collapsed at one side ( and is still getting worse )there is already signs this is starting to spread to her kidneys as this is what this disease does it attacks your organs including your heart and lungs, without any treatment years ago the out look was just 5 months survival time.

Katie was the most bubbly sociable girl who was always out doing fun things with her 4 kids Ollie aged 13 Ayla aged 11 Teddy aged 3 and Grace aged 1 - her life changed over night and now she hardly leaves bed as she is so weak and even if she could she doesn’t want people to see her like this she is so self conscious about her face.

The goal here is to raise money in hope that we can get Katie on alternative therapy’s / clinical trials / medicines while still always researching for other options, as so far it appears that most options and clinical trials etc are in America - we are looking into oil to get her started on and hopefully god willing if we can get her symptoms under control and her disease into remission then she can get her nose reconstructed. We don’t want her having to worry about the costs of all this on top of what she is going through so I just know the people of Dundee are amazing and can pull together for each other let’s do this for Katie!!

We will be setting a page up ‘ Katie’s fight against Granulomatosis and Polyangitis’ for everyone to get updates should they like to keep in the loop about her condition and help raise awareness of this awful not spoke about or known about enough disease!

Times are really really hard at the moment we understand this but please give what you can even if it’s £1 it would mean the world to Katie her family and Friends near and far.

Please come on this journey and help Katie fight this … Thankyou for reading love Tara & Sonia

edit - I have raised the amount as Katie is deteriorating rapidly in a hope we can go private for care for her