Main fundraiser photo

Kayla's Endometriosis Fight

Donation protected

In the beginning of 2019, our best friend Kayla was diagnosed with Endometriosis and Adenomyosis after years of pain and misdiagnosis. She has seen countless doctors, has recently had major surgery in February for the Endometriosis and Adenomyosis and continues to suffer from chronic pain everyday of her life. This has caused her to take a leave of absence from her full time RN position since December and medical expenses have been just as debilitating as this disease is. She continues to see many doctors including physical therapists, pain management doctors, Endometriosis and Adenomyosis specialists.  This disease requires long term care and multiple surgeries as it continues to progress over time, and for Kayla her condition has progressed faster than most. She spends most of her days struggling to get out of bed and walk and questions if she will continue to be able to afford the care she needs to properly heal that her healthcare will not cover.

Due to the lack of endometriosis specialists and most doctors do not take insurance/are out of network, Kayla has been paying for each appointment out of pocket. These bills have been adding up, disabling her from receiving the full treatment she needs to get better.


Despite all of this, Kayla has done her best to fight and remain positive. Her family and friends want to support her as much as they can so she can focus on getting better and getting the necessary medical attention she needs. We would so greatly appreciate any help so that we can get our Kayla back to living a normal life!

We love you so much Kayla! Katie L. & Katie K. 


To learn more about Kayla’s story from her perspective please read below:

"In honor of Endometriosis Awareness Month- I am one in 10. After 8 years of misdiagnoses, and doctors dismissing my pain and symptoms, I finally have an answer. These Xs represent places I feel the pain of Endometriosis and Adenomyosis. 

Since age 14, I have visited nearly 20 specialists who have failed me. I was misdiagnosed with ovarian cysts, IBS, anxiety, “it’s all in your head.” When I couldn’t bare to eat due to the constant pain, my body suffered the 30lb weight loss and malnourishment. Only when my illness became slightly visible, I was suddenly being tested for cancers. Fortunately, those tests came back negative, but the cause of my pain remained unknown. 

Endometriosis is a disease where endometrial-like tissue is found outside of the uterus. It is considered an #invisibledisease. I may not look sick, but I feel sick. I may walk around with a smile, but inside I’m grimacing from unbearable cramps. I may have pushed through nursing school and became an RN, but I suffered daily with one or more debilitating symptoms. When the pain became so bad that I could no longer safely perform my RN duties, I once again set out to find a doctor who would give me a diagnosis. In January, I was fortunate to find a surgeon who took my symptoms seriously and listened to my story. I was diagnosed with Stage IV Deep Infiltrating Endometriosis and Adenomyosis. In February, I had surgery to remove 63 lesions from various areas. 

On average, it takes 7-10 years for women, men, non binary folk and others to be diagnosed with Endometriosis. My pain is real. Yours is too. Women - extremely painful periods are not normal. Pain in weird places all at once is not normal. If you are suffering, take a stand and take back your life. Visit endostats.com Endowhat.org or endofound.org to learn more and spread the word on this disease. "
Donate

Donations 

    Donate

    Organizer and beneficiary

    Katie Lorello
    Organizer
    East Islip, NY
    Kayla Hanley
    Beneficiary

    Your easy, powerful, and trusted home for help

    • Easy

      Donate quickly and easily

    • Powerful

      Send help right to the people and causes you care about

    • Trusted

      Your donation is protected by the GoFundMe Giving Guarantee