Kaylee’s Krusade

Kaylee has been on a LONG journey to find answers to her medical complexity. She has been through test after test with no answers and is continuing to decline in her fine and large motor skills including walking and speaking. Her family is doing everything they can to treat symptoms while the wait for answers. As you all know the medical world is horribly expensive but so very necessary. The Bland family can use all the prayers you have and if you are able they could use some financial support. Kaylee is such a fighter and continues to smile through it all!!

Here is an update from her mom, Tanya, as of December 2019:
Here is the history of Kaylee's medical journey. We are at a loss for answers and the medical community call her an enigma and a medical zebra. She is 6 years old and we have been fighting since she was 2 to find out what is going on with her. It started with her just falling more than a normal 2 year old (which the Dr's put off that she was just clumsy). At 3 the speech became more difficult and strange falling incidences became monthly, but she was developing normally (although I could tell her fine and gross motor skills were an issue-no one else was concerned). At 4 our pediatrician actually witnessed her fall (almost like her legs just gave out from under her) she was also concerned about her ability to pop her hip and knees out of joint. So, we went to an orthopedic surgeon who thought it was Ehler's Danlos. He sent us to many specialists. Sometime after she turned 4, she lost the ability to write her name and recognize the letters and numbers that she had learned. She would also forget where the bathroom was and was regressing with bathroom issues. We've been to at least 10 different specialists in the past 2 years. They can’t explain why one day she is acting like a 6 year old and another day she is more like a 3 year old. They can’t explain the learning disability issues and sensory processing issues. They can't explain why she has pain in her arms, legs or back at different times. They can't explain her ataxia symptoms and why some days she can walk/balance better than others. That brings us to where we are right now. Our once "wild" child that ran everywhere, ballerina dancer, scooter riding extraordinaire cannot walk unassisted and needs to use either a walker or a wheelchair most days.
Driving to appointments, finding treatments and doing testing that are out of pocket are taking a toll but we are determined to continue to fight to find answers to give Kaylee the best life possible.