#KilliansJourney
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Our 4 year old son Killian Viktorius Christie was diagnosed with Late Infantile Metachromatic Leukodystrophy (LI-MLD) at 2yrs old, this is a very rare neurological disorder that depletes the white brain matter and eventually leads to a person not having any muscular control, along with a loss of sight and a loss of hearing.
It is such a rare terminal Illness that it is still in it's stages of research for experimental treatment, and as of now research shows that our son will probably not live past 5-6 years old.
Killian also has four big sisters and, as his father, it has been an every day struggle to keep my 4 daughters and wife level headed and positive in the wake of this tragedy. Facing the inevitable loss of someone you love is hard at any age.
But though Killians diagnosis is terminal, I refuse to give up hope. Every moment we have with Killian is priceless. And regardless of how Killian's Journey ends we will be able to find some comfort in knowing the research & knowledge they will gather from our sons story will help to develop treatments and one day, a cure.
To anyone reading this, you have a chance to truly make a difference with us, we just want to give our son the best time he has left on this Earth. We initially created this GoFundMe with the intention of chasing treatments. But after finding out that Killian does not qualify for any treatments (even experimental ones) we have decided to keep it going so big hearted people can contribute to Killians quality of life and help us make every moment of Killians life into a wonderful memory.
From me, my wife, our 4 daughters, and our sweet baby boy,
THANK YOU!!!
Follow #KilliansJourney on Facebook & Instagram
Facebook
Facebook.com/killiansjourney
Instagram
@killiansjourneypage
It is such a rare terminal Illness that it is still in it's stages of research for experimental treatment, and as of now research shows that our son will probably not live past 5-6 years old.
Killian also has four big sisters and, as his father, it has been an every day struggle to keep my 4 daughters and wife level headed and positive in the wake of this tragedy. Facing the inevitable loss of someone you love is hard at any age.
But though Killians diagnosis is terminal, I refuse to give up hope. Every moment we have with Killian is priceless. And regardless of how Killian's Journey ends we will be able to find some comfort in knowing the research & knowledge they will gather from our sons story will help to develop treatments and one day, a cure.
To anyone reading this, you have a chance to truly make a difference with us, we just want to give our son the best time he has left on this Earth. We initially created this GoFundMe with the intention of chasing treatments. But after finding out that Killian does not qualify for any treatments (even experimental ones) we have decided to keep it going so big hearted people can contribute to Killians quality of life and help us make every moment of Killians life into a wonderful memory.
From me, my wife, our 4 daughters, and our sweet baby boy,
THANK YOU!!!
Follow #KilliansJourney on Facebook & Instagram
Facebook.com/killiansjourney
@killiansjourneypage
Organizer
Josh Epic Christie
Organizer
San Andreas, CA