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Emergency Health & Help for Kavin

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UPDATE: 37 doctors including new Endocrinologist and Hematologist/Oncologist There are days when I wake up with a burst of energy. Give it an hour and I’m back in bed. Everyone feels differently with each disease. Put all those diseases together. Many days I actually feel like I won’t wake up Today I see another Hashimotos Specialist, my 34th doctor in 3 years. I also see my psychologist because Hashimotos doesn’t play games as it attacks my brain, heart, the abdominal aortic aneurysm. It also encourages other autoimmune diseases to flareup. I had shots in my left hip for Pagets Disease a week ago. As I wake up several times a night due to extreme sweat and pain, I have to take pain medicine for the Pagets. The drs, so far, believe this condition(s) goes far beyond Hashimotos Disease. However, with so many Hashimotos flareups, each time my organs, including my brain, heart, and, abdominal aortic aneurysm are damaged further, speeding the process toward life or death surgery on my heart, aneurysm or both. Your help is not only needed; but, appreciated. I’ve not worked since late 2017; and, still have to wait over a year from now for my court hearing for Disability. So, thank you

Until 3 years ago, I was always able to get around, enjoy my life, and volunteer for many causes. I’ve volunteered for political campaigns and rallies supporting my friends and allies in the LGBTQ community.  

From 2011-2017, I raised approximately $18,000 for the Las Vegas AIDS Walk, raised over $1000 for our friends in the LGBTQ community. I’ve even spontaneously raised hundreds for many organizations via money and food. 

In 2017, everything changed. I couldn’t work any more.  I began feeling extremely tired and sick. It took nearly 6 months for a diagnosis of Hashimotos Disease.  Yet, even on the medicine, with adjusted doses, it has gotten worse. 

In between all that, I had cervical spine surgery, which left me with severe tremors, memory lapse, inability to walk far.  Also, it all triggered new autoimmune diseases like Pagets Disease, which is so painfu,I cannot describe it. 

While having the Cat Scan for the Pagets in my left hip, they discovered the worst. I have an Abdominal Aortic Aneurysm with only a centimeter left before I have a life or death surgery. It has grown nearly a centimeter in about 5 months. 

Ive been turned down by SSDI, which was started during 2018, before all the other diagnoses. My attorney has said we have to go to court...in about a YEAR, regardless of the new diagnoses. 

Ive been relying on family and it has now put a severe strain on them. 

I can’t even pay my portion of my mortgage of $750, or utilities, or car. 

I’m asking you, as a friend, a former volunteer, as that person who always stepped in to help. 

Please help me.  It means I can stay in place and survive while the doctors (now over 33 of them ) help me get better.

In the photo you can see the disfigurement in my neck.  It’s worse now. 

Organizer

Kavin Burkhalter
Organizer
Las Vegas, NV

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