Kody's Journey

Jessica (the mother) was told at the age of 13 that she would never be able to have children as she had fibromyalgia and endometriosis. After years of pain and suffering and numerous specialist and operations, at the age of 27, one day, she got a phone call from her gynaecologist to say she had a very, very, very small window to try and get pregnant.

We have no idea where this phone call came from out of the blue after all these years.

After a lot of consideration, she decided to try, as all she ever wanted was to be a mother.

Against all odds, she fell pregnant, and our little miracle baby (Kody) came into the world, but again not without a lot of sickness and stays in hospital.

In April this year, at 28 weeks, Jessica became violently ill and was admitted to Young Hospital. She was then transferred to Canberra Hospital.

She was diagnosed with VERY SEVERE PRE-ECLAMPSIA. Both her and the baby were at great risk.

She was in Canberra hospital for nearly 4 months. They needed to take the baby, but it was too early as he was only 28 weeks baby, and mum was going backwards fast, so at 29 weeks baby was taken.

Our little miracle Kidy was brought into the world. He was classed as a MICRO PREM BABY, and he was in the 1% of the smallest babies in Australia at just 729 grans for his gestation. He was born with 12 ongoing health problems.

Some of which are:

Three holes in his heart

Jaundice

general movements

extremely prematurity (29 weeks)

bone disease

respiratory distress syndrome

extremely low birth weight (729 grams)

eyesight

All of which are years of ongoing trips to Canberra to physios and treatments

In August, Kody became ill and was rushed by plane back to Canberra hospital to find he had hernias and was immediately operated on.

Mid-September had to return to Canberra hospital for paediatric surgery post-op check-up and was told another surgery in April.