Jillian’s Liver Transplant Fund
Donation protected
There will be many expenses the family must pay for while they are doing the pre-testing as well as when the time comes for the actual transplant. We appreciate any assistance to help with the financial aspect of this journey. Their hope is to be able to focus on Jillian’s healing, instead of the financial burden.
With the amazing support from Doernbecher Children's Hospital in Portland the Beagley's wanted to give back and over the course of 7 annual toy drives were able to donate nearly 6,000 new toys to Doernbecher.
They have a heart for helping others, so now it’s our turn to help them! Please keep the Beagley family in your thoughts and prayers as well
If you wish to donate directly to the family, they can accept via Venmo or you can mail a check. Please contact Theresa Collins at [email redacted] or [phone redacted] for mailing address or any questions.
A note from the Beagley Family-
With the amazing support from Doernbecher Children's Hospital in Portland the Beagley's wanted to give back and over the course of 7 annual toy drives were able to donate nearly 6,000 new toys to Doernbecher.
They have a heart for helping others, so now it’s our turn to help them! Please keep the Beagley family in your thoughts and prayers as well
If you wish to donate directly to the family, they can accept via Venmo or you can mail a check. Please contact Theresa Collins at [email redacted] or [phone redacted] for mailing address or any questions.
A note from the Beagley Family-
We have known since Jillian was 3-month-old she would need a liver transplant. We were once told she would need a new liver before she started kindergarten. Jillian is now 11, and each year that has passed that she has been healthy has been a blessing. Every year she proved the doctors wrong and helped her parents keep hope that what we feared most may never come.
The last few months have been rough for our family. Last winter during routine tests, an ultrasound showed two lesions on Jillian’s liver. After retesting in November, the lesions had grown. Then in mid-December a MRI showed it was actually one large lesion instead of two, and the shape and size were worrisome for cancer. On December 23rd a biopsy was done and just before New Year's we got the call that thankfully the results came back as benign. We did our best to enjoy Christmas with the kids, but waiting for that phone call was emotionally rough. Although the doctor told us it was benign, he said that
because of the size of the lesion, it poses a risk of spontaneously rupturing.
We then were told by the surgeons here that the lesion could/would be resected and Jillian would be fine. After getting a second opinion, the transplant team at Stanford reviewed Jillian’s case and said they were concerned. Removing the lesion and the possible complications that come with it are too big and scary. On their advice we have decided to move forward with the transplant.
We feel like we have been running from this transplant for years, and now here we are forced to face it. Jillian and Jennifer will travel down to Stanford from Portland later this month to complete the pre-transplant tests/work up. Because of COVID restrictions Ryan and Reese won’t be able to come with them. After the tests, Jillian will be given a PELD score and placed on the waiting list. Then we wait for a liver that is a good match for her or find a friend/family member that could be a living donor.
This is all so scary and overwhelming for us. All we will be able to do is wait, wait for the transplant we have been running from for 11 years and hope it comes soon. We have always been thankful that while Jillian knows about her liver disease and has seen pictures and heard stories, she doesn’t remember it. Jillian is really scared but trying to put on a brave face.
Biliary atresia is a disease of the bile ducts that affects only infants. Bile is a digestive liquid that is made in the liver. It travels through the bile ducts to the small intestine, where it helps digest fats. In biliary atresia, the bile ducts become inflamed and blocked soon after birth. Biliary Atresia is a rare disease affecting 1 in 8,000 to 1 in 18,000 live births worldwide. About 10-20% of infants with biliary atresia have abnormalities in other organs, such as heart defects or issues with their spleen.
Organizer
Theresa Collins
Organizer
Federal Way, WA