Aiden's medical fund
Donation protected
Our son, Aiden Clark is 8 years old and has just been diagnosed with a rare bone disease called Fibrous Dyplasia.
Aiden is truly a very special boy. He excels in school; is in the Gifted and Talented Program and exhibits leadership skills in sports along with most everything else in which he participates. He has a quick wit and a playful sense of humor, but more importantly he is a loving soul with a heart of gold that embraces us all. His future seemed so bright until a large tumor was recently discovered as a result of a routine eye exam. The wind was knocked out of our family when we learned that this tumor has wrapped around his optic nerves and sinus cavity. This rare genetic disorder consists of scarlike (fibrous) tissue that develops in place of normal bone which then causes the affected bone to weaken and create deformities. The expansion of this lesion has already adversely affected his optic nerves and gone without extensive checkups will lead to total loss of vision. Time is of the essence due to the rapid growth of the tumor so our priority is to have a team of specialists perform a delicate surgical procedure that would lift the tumor off the nerves that control his vision. Long term there is only medication that may help to slow the growth of this mass during the course of his life. We have a long road ahead of us, as there is no known cure for this disease. We have HOPE.
Aiden is truly a very special boy. He excels in school; is in the Gifted and Talented Program and exhibits leadership skills in sports along with most everything else in which he participates. He has a quick wit and a playful sense of humor, but more importantly he is a loving soul with a heart of gold that embraces us all. His future seemed so bright until a large tumor was recently discovered as a result of a routine eye exam. The wind was knocked out of our family when we learned that this tumor has wrapped around his optic nerves and sinus cavity. This rare genetic disorder consists of scarlike (fibrous) tissue that develops in place of normal bone which then causes the affected bone to weaken and create deformities. The expansion of this lesion has already adversely affected his optic nerves and gone without extensive checkups will lead to total loss of vision. Time is of the essence due to the rapid growth of the tumor so our priority is to have a team of specialists perform a delicate surgical procedure that would lift the tumor off the nerves that control his vision. Long term there is only medication that may help to slow the growth of this mass during the course of his life. We have a long road ahead of us, as there is no known cure for this disease. We have HOPE.
Organiser
Jenny Clark
Organiser
Richmond, TX