Lacey-mae get a safe place to sleep

This fund raiser is to help in getting a safe bed for lacey-mae to sleep.

Lacey-mae is a beautiful, sweet, funny, happy, silly little girl who is one of a kind in all possible ways.

She was born with 2 incredibly rare chromosomal conditions 9p24.2-p23 deletion which affects just 1 in 50,000 children the other condition is 7q21.11 deletion which has only 10 cases ever recorded with lacey being the 11th. Lacey-mae is the only person in the world to have ever had both conditions together. Her life so far has been full of hospital stays, countless visits to multiple health professionals as the conditions have manifested in many ways. She has a history of seizures, was unable to eat or drink orally so had an ng feeding tube fitted at 5months old which progressed to a gastrostomy at 3years old, at 5 she is currently unable to walk, non verbal, has visual impairment but due to her high sensory needs refuses to wear her glasses. She also has no sense of danger which is the main reason for her needing a safer option to sleep. At the moment she is sleeping on a bed which is essentially just a mattress on the floor with a wooden frame around it. But she started crawling at 4years old and is now able to crawl off of it which has a whole new set of challenges. There has already been an occasion of her managing to get out of bed and hitting her head which resulted in a visit to the hospital after her being found covered in her own blood. She requires 24/7 supervision and at night that is unfortunately not possible.

She is a very inquisitive little girl and constantly finding new ways to get herself into potentially dangerous situations making night time an extremely vulnerable time for her especially as she does not sleep through the night often getting out of bed and pulling drawers out of units onto herself and has now learned she can open her bedroom door if she kneels making her able to access the rest of the home including the kitchen and bathroom. Medical services in our area are severely lacking and she has been on the wait list for months if not years yet we are no further forward in getting her any of the equipment she so desperately needs. She is waiting for multiple other items, wheelchair, walking frame, standing frame, new AFOs and as she is getting heavier it won't be long before hoists is added to the list. Not including sensory equipment and communication devices, but her security at a time she should be able to safely rest is by far the most important.

Any help that people could offer would be more appreciated than I could ever say.

Thank you in advance.