Lailani's New Pump/Health Insurance Assistance
Donation protected
First, let me Thank You for your time and consideration. This is my Daughter Lailani Hickerson. For the past 34 years, my wonderful daughter has been fighting a serious health condition. It comes with a heavy heart to say my daughter Lailani was born with a condition known as Cerebral Palsy due to a complication during her birth. She was later diagnosed with Epilepsy at a young age.
Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It’s also called a seizure disorder. When a person has two or more unprovoked seizures, they are considered to have epilepsy. A seizure happens when a brief, strong surge of electrical activity affects part or all of the brain.
Cerebral palsy is the most common motor and movement disability. It is a neurological disorder that affects a child's motor skills, movements, and muscle tone. Cerebral palsy is caused by brain damage that develops while the baby is still in utero, during labor and delivery, or shortly after birth.
As a parent of a child with Cerebral Palsy, the feeling of uncertainty has no bound, but it is even more amplified when seizures are added to the mix. Lailani's seizures vary in duration, intensity, frequency, physical presentation, and controllability. For Lailani, dealing with her seizures can feel like a roller coaster. Luckily, recent advances in seizure prevention and treatment have made seizures less scary than they used to be.
Years ago Lailani had undergone a procedure to surgically implant a device known as a Baclofen Pump into her abdomen to help manage her violent muscle spasms associate to her Cerebral Palsy. The baclofen pump system consists of a pump and a catheter that brings the medication from the pump into the spinal fluid. The pump is a round metallic disc (about 1 inch thick and 3 inches in diameter), which is surgically implanted under the skin of the abdomen. The pump contains a battery, which usually lasts between five to seven years, a reservoir for the medication, and a microprocessor.
Unfortunately, the device is beginning to fail sooner than expected, and as a result, her muscle spasms are becoming more frequent and violent. The stress her body goes through during these spasms at times causes her to experience unpredictable seizures. This device needs to be replaced as soon as possible to prevent further harm. We hope to have her surgery this summer, but it may have to be sooner than that. This device has genuinely been a benefit to her life and has allowed her to have a more independent lifestyle. I am 54 years old working three jobs to save enough money to pay for the portion of the procedure my health insurance will not cover. I come to you all with a heavy heart and only ask of you to give what you can and help Lailani. We thank you all for your time and support.
Bless you All
Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It’s also called a seizure disorder. When a person has two or more unprovoked seizures, they are considered to have epilepsy. A seizure happens when a brief, strong surge of electrical activity affects part or all of the brain.
Cerebral palsy is the most common motor and movement disability. It is a neurological disorder that affects a child's motor skills, movements, and muscle tone. Cerebral palsy is caused by brain damage that develops while the baby is still in utero, during labor and delivery, or shortly after birth.
As a parent of a child with Cerebral Palsy, the feeling of uncertainty has no bound, but it is even more amplified when seizures are added to the mix. Lailani's seizures vary in duration, intensity, frequency, physical presentation, and controllability. For Lailani, dealing with her seizures can feel like a roller coaster. Luckily, recent advances in seizure prevention and treatment have made seizures less scary than they used to be.
Years ago Lailani had undergone a procedure to surgically implant a device known as a Baclofen Pump into her abdomen to help manage her violent muscle spasms associate to her Cerebral Palsy. The baclofen pump system consists of a pump and a catheter that brings the medication from the pump into the spinal fluid. The pump is a round metallic disc (about 1 inch thick and 3 inches in diameter), which is surgically implanted under the skin of the abdomen. The pump contains a battery, which usually lasts between five to seven years, a reservoir for the medication, and a microprocessor.
Unfortunately, the device is beginning to fail sooner than expected, and as a result, her muscle spasms are becoming more frequent and violent. The stress her body goes through during these spasms at times causes her to experience unpredictable seizures. This device needs to be replaced as soon as possible to prevent further harm. We hope to have her surgery this summer, but it may have to be sooner than that. This device has genuinely been a benefit to her life and has allowed her to have a more independent lifestyle. I am 54 years old working three jobs to save enough money to pay for the portion of the procedure my health insurance will not cover. I come to you all with a heavy heart and only ask of you to give what you can and help Lailani. We thank you all for your time and support.
Bless you All
Organizer
Alfreda Hickerson
Organizer
Wichita, KS