Lakelyn's Medical Expenses
Donation protected
Lakelyn Storvik was born on the morning of July 8th 2016 weighing 5lbs. A few hours later her parents, Paige and Erik Storvik were notified by the doctors that she was diagnosed with CHARGE syndrome.
She was born with multiple ailments, two of which required major surgery. She could not breathe through her nose (Choanal Atresia - https://en.wikipedia.org/wiki/Choanal_atresia ) and her esophagus was not connected to her stomach (Tracheoesophageal Fistula or TEF - https://en.wikipedia.org/wiki/Tracheoesophageal_fistula ). Without modern medicine and hospital care, Lakelyn likely would not be with us today.
Within the first week of her life she had surgery to repair the Atresia and TEF. Both were successful surgeries and Lakelyn has been on the path of recovery ever since. She is now breathing and eating on her own! Her parents see improvement with every passing day.
The doctors have also said Lakelyn has coloboma in both of her eyes and could possibly be blind. The ophthalmologist initial assessment believes it to be coloboma of the optic nerve in both eyes. Both parents are moving forward in great faith that their little girl will have some sight.
Lakelyn has now been in the Infant Special Care Unit (ISCU) for over 6 wks. CHARGE syndrome babies often have hearing problems as well. It is too early to know what extent of hearing she may have. She failed the initial hearing test and will require close follow up/retesting to determine the level of hearing capacity.
The Storvik family has remained in positive spirits and hope to have their little girl home from the ISCU and with them soon!
Medical care is extremely expensive, with tens of thousands of dollars of expenses to help Lakelyn get through the first few weeks of life. Funds raised will go to the Storvik family, to help cover some of the medical costs they're incurring.
She was born with multiple ailments, two of which required major surgery. She could not breathe through her nose (Choanal Atresia - https://en.wikipedia.org/wiki/Choanal_atresia ) and her esophagus was not connected to her stomach (Tracheoesophageal Fistula or TEF - https://en.wikipedia.org/wiki/Tracheoesophageal_fistula ). Without modern medicine and hospital care, Lakelyn likely would not be with us today.
Within the first week of her life she had surgery to repair the Atresia and TEF. Both were successful surgeries and Lakelyn has been on the path of recovery ever since. She is now breathing and eating on her own! Her parents see improvement with every passing day.
The doctors have also said Lakelyn has coloboma in both of her eyes and could possibly be blind. The ophthalmologist initial assessment believes it to be coloboma of the optic nerve in both eyes. Both parents are moving forward in great faith that their little girl will have some sight.
Lakelyn has now been in the Infant Special Care Unit (ISCU) for over 6 wks. CHARGE syndrome babies often have hearing problems as well. It is too early to know what extent of hearing she may have. She failed the initial hearing test and will require close follow up/retesting to determine the level of hearing capacity.
The Storvik family has remained in positive spirits and hope to have their little girl home from the ISCU and with them soon!
Medical care is extremely expensive, with tens of thousands of dollars of expenses to help Lakelyn get through the first few weeks of life. Funds raised will go to the Storvik family, to help cover some of the medical costs they're incurring.
Organizer and beneficiary
Brian Roberts
Organizer
Brookfield, WI
Erik Storvik
Beneficiary