
Please help Lana fight for services she needs
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Hi My Name is Lala. I'm here on behalf of my daughter Lana who has been diagnosed with Di-George syndrome also known as 22q11. 2 deletion syndrome — is a disorder caused when a small part of chromosome 22 is missing. This deletion results in the poor development of several body systems. She was born with a cleft palate, had 2 surgeries already by the age of 7. She also has several development delays, which has led her to be in an individual education plan since the age of 6. Later in life I was told she may develop other health issues, including and not limited to mental health illness. I never worried so much about this because she was doing so well socially and academically in school until the age of 13 when she had her 1st psychotic episode and was diagnosed with schizoaffective disorder. From the 1st psychotic episode her mental status began to decline. She use to be surrounded by others. She had many friends and cousins her age to hang out with and now they all run away from her as if she is a disease. It’s so heartbreaking to see. I had to assure her people are just ignorant and don’t completely understand her illness. Told her not to not mind others however to a 14 year old girl of course it weighs heavy . So heavy it caused her 2nd psychotic episode. Then her 3rd last year. She has been hospitalized several times and has changed her anti-psychotic medication several times. I foresee this being an issue for the rest of her life. It’s hard to see her not be the sweet girl we all used to know. Not only does she have to deal with internal organ issues, she’s having to fight daily with the battle that’s in her mind. Constant auditory hallucinations, delusions, and paranoia. And therapy can do so much with her coping this without an actual community of friends who can be there by her side to experience life with her. I’ve tried reaching out to foundations and even to my local church I attend, no one responded. She’s so forgetful now and can’t do simple everyday things such as flossing her teeth or even get dressed correctly. She’s now on a life skills track program at a non-public school system as opposed to a regular diploma track high school system. I’ve tried to get Inland Regional Support Services for her, however they denied her. Inland Regional Services stated her mental illness is not a good enough diagnosis to give her free services. Services that will help her get into specialized programs for young kids and adults to learning to live with their disorders, receive free therapy and get help with in-center care if needed. We have appealed but was told to hire a lawyer to give her, her best chance. I am having a difficult time making enough to help support Lana’s care. She has so many appointments from psychiatric, nephrology, and therapy just to name a few on a monthly basis. And this year she will turn 18, which is completely alarming because she has a mentality is of a 12 year old child and won’t be able to make decisions on her own which is why I'd like to start the process of getting conservatorship over her, again this too requires funds I don’t currently have. I have exhausted all my savings. I have tried applying to higher paying positions with no luck. It’s either I’m over qualified or I’m not good enough. I am emotionally and physically exhausted. I am without any other options but this....Posting this and asking for help was the last thing I'd thought I'd resort to, but because I'm running out of time and because I want to give my daughter a fighting chance to live a normal life as possible with her condition, I will humble myself to ask for your help. Please, I beg of your help with her cause! Help Lana fight the system and get the services she deserves. What the funds will be going towards are 2 cases, 1st case is to hire a lawyer to fight for services with Inland Regional Services and 2nd case is to hire a lawyer for conservatorship over Lana, so that I may help her with educational, life and health decisions when she turns 18. My hope out of all of this, is that more people will educate themselves about 22q11.2 deletion syndrome and all it's life barriers it comes with. Especially the mental illness part of it all. With that said I'd like to Thank everyone who took the time to read all of this. I am truly grateful for anything you can give. "It's not the gift but the thought that counts" May God Bless you and yours.
Organisator
Lala Padillo
Organisator
Buena Park, CA