Landen Shane Wallace
Landen is the son of Shane and Emily. After struggling to breathe after birth he had a 2 week stay in the NICU unit. This fall he came down with pneumonia & rhino enterovirus and was transferred to a Children's hosptial on Christmas day where he has been since. His oxygen levels dropped down to beyond critical levels, no one including doctors knew what exactly would happen and he was placed on life support after his little lungs collapsed. He has made dramatic improvements since that day that can't really be explained.
Emily Wiebe - "I’ve never experienced the true power of prayer until we had Landen. Our boy is a miracle maker, he’s a fighter, and I have no doubt in my mind God has something big planned for him. I thank each and everyone of you that took time out of your days to say a little prayer for Landen. He’s got a road of recovery ahead of him, but he’s improving, and for that I’m even more thankful."
Shane & Emily are currently traveling back and forth from the hospital on rotation as much as they can. Taking turns spending time with their older son Logan in the evenings and getting him to school in the mornings. Traveling expenses are adding up and the medical bills will soon follow. This is a trying time for them emotionally, physically, mentally & financially. Prayers and support help tremendously. Financially, I think we can do more. Let's help take some stress off their shoulders, we all know they have enough to carry right now. God Bless.
*** UPDATE *** 1-31-19***
Shane - Not quite sure how to put this in words, but here is the update on Landen. On Tuesday, the day Landen turned 5 months old and day 36 in the PICU, we recieved the results from genetic testing. The results came back that he has a rare genetic disease called Spinal Muscular Atrophy with Respiratory Distress (SMARD1). There has been less than 100 cases reported worldwide. The literature on this disease is very limited and the outlook is generally pretty terrifying if you go by that literature. After connecting with other parents that have gone through this I've learned that statistically me and Emily had a better shot at winning the lottery than we did meeting someone else who carried this same recessive gene mutation that we both do. At this point we aren't sure what the future holds and are taking our time making a decision on what to do going forward. What we do know is that our friends and family have been amazing and we appreciate everything that everyone has done immensely. I'm sure many will have questions about what we are going to do going forward but right now that's a decision our immediate family will make after a lot of praying, thinking, researching, and soul searching. Thank you and god bless.
http://www.smashsmard.org
*** UPDATE *** 3-20-19***
Landen is getting big! Please keep them in your prayers and head over to Facebook to follow his journey! Thank you for your support!