Help Amanda LIVE!!
Donation protected
Since Amanda was diagnosed in June of 2018 with an EXTREMELY RARE disease called Aggressive Systemic Mastocytosis*, we are now in the twilight zone of unforeseen circumstances and impossibly hard choices. Life has drastically changed and we are getting closer and closer to the last and final option in treatment, a Stem Cell Transplant...the worst level of this process is planned and it is going to be the biggest uphill battle on this long road as well as the last hope for a CURE. This is even more of a journey than we ever imagined and the remainder of this is going to take a village of incredible people to get through.
If you knew Amanda, you would love her as we, her friends, and family LOVE her. Her bravery, determination and sense of humor could teach us all something about loving life. She is so amazing and I cannot imagine life without her. Her disease is as unique as she is, affecting only a small percentage of people and no other diagnosed cases even close to her age, maybe in the world. She is now the guinea pig of this rare form of blood cancer in the U.S., which poses even more of a need for funding her treatment as well as LIFE SAVING, EXPERIMENTAL medications, living expenses, stem cell transplant, care after transplant and if we’re being uncomfortably honest, possible funeral expenses down the road. No part of this is easy but maybe we can help to ease the burden of all of this on her, her family and her loved ones.
She had an independent life before her diagnosis, supporting herself, working a full time job and making Independent Films in her free time. It makes her very uncomfortable to have to depend on others for help however, her options are limited and her window is narrow. Now is the time for us to come together and show her the love and support we have for her during this impossible challenge only few can imagine.
In the next few weeks, there will be yet ANOTHER bone marrow biopsy and another Serum Tryptase lab (An enzyme released from mast cells in the body and a main marker of the disease) to test disease levels, as well as more work ups to test organ function since organ failure is a MAJOR concern with the progression of this disease. These are the final steps before we head to the STEM CELL TRANSPLANT portion of this crazy adventure. As optimistic as we are, the prognosis of this disease keeps us realistic and GREATFUL for every single day to keep FIGHTING.
Please send notes of encouragement as it’s so important for her to know people care and makes her journey to live less painful! Thank you for your constant support, love and continued prayers, helping me save my best friend!! ❤️
*AGGRESSIVE SYSTEMIC MASTOCYTOSIS
A rare condition in which too many mast cells (a type of white blood cell) build up in certain tissues and organs in the body, including the bone marrow, lymph nodes, bone, liver, spleen, and small intestine. Aggressive systemic mastocytosis may get worse quickly and cause severe symptoms and organ damage. Sometimes, it may become mast cell leukemia (a very rare type of leukemia). Aggressive systemic mastocytosis usually occurs in adults. Also called ASM. -The National Cancer Institute www.cancer.gov
Please continue to check in for updates! THANK YOU!
If you knew Amanda, you would love her as we, her friends, and family LOVE her. Her bravery, determination and sense of humor could teach us all something about loving life. She is so amazing and I cannot imagine life without her. Her disease is as unique as she is, affecting only a small percentage of people and no other diagnosed cases even close to her age, maybe in the world. She is now the guinea pig of this rare form of blood cancer in the U.S., which poses even more of a need for funding her treatment as well as LIFE SAVING, EXPERIMENTAL medications, living expenses, stem cell transplant, care after transplant and if we’re being uncomfortably honest, possible funeral expenses down the road. No part of this is easy but maybe we can help to ease the burden of all of this on her, her family and her loved ones.
She had an independent life before her diagnosis, supporting herself, working a full time job and making Independent Films in her free time. It makes her very uncomfortable to have to depend on others for help however, her options are limited and her window is narrow. Now is the time for us to come together and show her the love and support we have for her during this impossible challenge only few can imagine.
In the next few weeks, there will be yet ANOTHER bone marrow biopsy and another Serum Tryptase lab (An enzyme released from mast cells in the body and a main marker of the disease) to test disease levels, as well as more work ups to test organ function since organ failure is a MAJOR concern with the progression of this disease. These are the final steps before we head to the STEM CELL TRANSPLANT portion of this crazy adventure. As optimistic as we are, the prognosis of this disease keeps us realistic and GREATFUL for every single day to keep FIGHTING.
Please send notes of encouragement as it’s so important for her to know people care and makes her journey to live less painful! Thank you for your constant support, love and continued prayers, helping me save my best friend!! ❤️
*AGGRESSIVE SYSTEMIC MASTOCYTOSIS
A rare condition in which too many mast cells (a type of white blood cell) build up in certain tissues and organs in the body, including the bone marrow, lymph nodes, bone, liver, spleen, and small intestine. Aggressive systemic mastocytosis may get worse quickly and cause severe symptoms and organ damage. Sometimes, it may become mast cell leukemia (a very rare type of leukemia). Aggressive systemic mastocytosis usually occurs in adults. Also called ASM. -The National Cancer Institute www.cancer.gov
Please continue to check in for updates! THANK YOU!
Organizer and beneficiary
Kelli Tidmore
Organizer
Louisville, TN
Amanda Eastman
Beneficiary