Let's Help David Walk!
Donation protected
My adorable nephew David decided to bless us with his appearance a bit earlier than planned, born at just 29 weeks. There were no severe complications and after 57 long days in the NYC Beth Israel Hospital, David was finally ready to come home to his family. He was discharged as a healthy boy.
My sister and brother in law first grew concerned about his developmental delay at around six months, as he had weak head control and was not rolling over. However, they were assured by David's neurologist that it was a normal part of development for a premature baby. According to the doctors, David would surely catch up.
Little did our family know then that David would soon be diagnosed with Cerebral Palsy (CP). I clearly remember the shock of being told that David has a “light” form of CP, he was 14 months old at that time.
He is now almost 3 years old and is the most adorable, sincere, funny little boy. The only thing that limits him in life is his inability to walk on his own.
My sister has researched many holistic methods of therapy such as BFM ( biodynamic fascial modulation), after the gold standard occupational and physical therapy did not seem to help. She even quit her job and went for training to be able to spend more time with him and become his own personal therapist. She feels that BFM produced the most progress and still does compared to other therapies. After trying many different traditional and non-traditional methods of therapy, his parents have decided that now it’s time to take a more aggressive approach and schedule a non-invasive procedure that will hopefully be the miracle we have been searching for.
The procedure is called PERCS (Selective Percutaneous Myofascial Lengthening), which is a non-invasive procedure that helps relax the muscle affected by the CP. It has helped many other children and our family has very high hopes that it will help David walk, run and may be even play hockey with his brother one day. There are only two surgeons that perform it in the United States, and as you may have probably guessed it’s not covered under the insurance. The procedure is scheduled for 2/28/17.
So this year, in lieu of birthday presents we are kindly asking for all of our family, friends, and anybody that would like to help to please donate to the fund to help us cover the cost of the procedure. Any amount is highly appreciated and we hope to make it the best present this sweet little boy will ever get.
My sister and brother in law first grew concerned about his developmental delay at around six months, as he had weak head control and was not rolling over. However, they were assured by David's neurologist that it was a normal part of development for a premature baby. According to the doctors, David would surely catch up.
Little did our family know then that David would soon be diagnosed with Cerebral Palsy (CP). I clearly remember the shock of being told that David has a “light” form of CP, he was 14 months old at that time.
He is now almost 3 years old and is the most adorable, sincere, funny little boy. The only thing that limits him in life is his inability to walk on his own.
My sister has researched many holistic methods of therapy such as BFM ( biodynamic fascial modulation), after the gold standard occupational and physical therapy did not seem to help. She even quit her job and went for training to be able to spend more time with him and become his own personal therapist. She feels that BFM produced the most progress and still does compared to other therapies. After trying many different traditional and non-traditional methods of therapy, his parents have decided that now it’s time to take a more aggressive approach and schedule a non-invasive procedure that will hopefully be the miracle we have been searching for.
The procedure is called PERCS (Selective Percutaneous Myofascial Lengthening), which is a non-invasive procedure that helps relax the muscle affected by the CP. It has helped many other children and our family has very high hopes that it will help David walk, run and may be even play hockey with his brother one day. There are only two surgeons that perform it in the United States, and as you may have probably guessed it’s not covered under the insurance. The procedure is scheduled for 2/28/17.
So this year, in lieu of birthday presents we are kindly asking for all of our family, friends, and anybody that would like to help to please donate to the fund to help us cover the cost of the procedure. Any amount is highly appreciated and we hope to make it the best present this sweet little boy will ever get.
Organizer and beneficiary
Elizabeth Sakharov
Organizer
Brooklyn, NY
Anna Shats
Beneficiary