Levi's Run- Adelaide to Melbourne to find a cure!

Hi my name is Steve and my 4 year old son Levi was diagnosed with a rare genetic condition called KCNQ2. There is roughly only around 1000 kids diagnosed world wide and at this present time there is no known cure.

In the last 12 months we have had multiple kids unfortunately pass away (3 in the last month) which is truly heartbreaking to hear.

So my family and I are here today to launch the next fundraising event to help raise much needed funds for the KCNQ2 foundation.

In November i will be embarking on a 700km run from Adelaide to Melbourne (65km a day) in 11 days and by doing so hoping to raise awareness and much needed funds for the KCNQ2 foundation in hopes to find a cure to create a better future for those who have been diagnosed with this rare condition.

This will be one of the toughest things I will do in my life (both physically and mentally) but it's nothing compared to what Levi has endured in his short life to date.

The 5month campaign will start today so if you can donate to this great cause (small or big) your donation would mean the world to not only my family but the whole KCNQ2 community. Every little bit will help as we strive to continue to find a cure.

We look forward for your ongoing support and love as we strive to achieve our goals in finding a much needed cure for this rare condition that effects our resilent and loving little man.

#FINDACURE #KCNQ2 #ADELAIDETOMELBOURNE