A Matter of Life & Breath
Donation protected
I'm Lexa Terrestrial.
UPDATE December 2024: $400 recently was spent for consulting with 2 new doctors!! Because Dr. Jang (who costed $600!!) the specialist in Korea who would have been ideal, told me my case was too tricky, said he'd need to examine me in person, but then refused to set that up?? He diagnosed many structural issues based on my CT scan & MRI But seemed too busy or complacent. It's extremely frustrating, disheartening so I am consulting with 2 new doctors. Before I give up hope completely. It was a Doctor that got me sick in this position & it seems like No Doctor wants to help, which is there job
If you know me you know that for the last 6 years I've been suffering with a rare neurological breathing condition called ENS that has took a huge tole on my LIFE & HEALTH.
the little that i am still able to do I fight for my life. & try to keep going.
99% of the day I cannot breathe unless I have some type of device.
To ENS Sufferers they often feel like they are drowning, suffocating or have a really bad cold 24/7.
The Symptons:
anxiety, depression, difficulty breathing, risk of suicide, respiratory infections, chronic infections, pain & facial nerve pain, TMJ, trouble swallowing or speaking, dry sinuses/throat, sleep difficulties, lack in quality of life
My Fight with SSDI – ENS Court Case
My Experience w/ “Empty Nose Syndrome” & Healthcare system
Another Video Describing How Treatment Is:
Health Update (I made need surgery) + more treatment
I have gotten several treatments with an ENS specialist but as you know I am looking for a permanent cure for these issues. This may require a very scary in depth surgery to fix damaged tissue & implants.
I've been to 217 doctors over the course of this time and have spent thousands on the upkeep of my health.
I no longer want to be a slave to this.
The Fight for Breath may require Surgery & Treatment
and a long journey of healing.
Organizer
Melody Novak
Organizer
Pittsburgh, PA