Life Changing Treatment for our daughter Zari

Meet Zari, our resilient five-year-old daughter, who faces a rare severity of her genetic condition affecting both her kidneys, resulting in nearly 60 urine/kidney infections. A lot of these infections have led to hospitalisations and even episodes of sepsis. Despite the challenges, Zari has shown immense strength and courage over the past four years, undergoing numerous scans, tests, operations, and biopsies in the quest for a solution. Unfortunately, her condition is incurable, making finding a treatment to prevent these infections crucial for safeguarding her kidneys from further damage and loss of function.

Zari's consultant has tirelessly searched for a solution, but with the severity of her condition being is so rare, that even with 30 years of experience, they've never encountered it before. Each attempt at medication has proven unsuccessful, leaving Zari reliant on antibiotics for every infection, which takes a toll on her immune system.

Every infection Zari now gets is more and more likely to require IV treatment as urine cultures are rapidly becoming resistant to oral antibiotics meaning IV is the only treatment, while that remains doable.❤️

Consequently, her school attendance suffers, although she adores being there and revels in the simple joys of being a five-year-old.

After extensive research and support groups, we've found a doctor in the US who offers hope, along with a few private UK doctors who, albeit primarily with adults, possess some knowledge of Zari's condition. However, the costs associated with consultations, tests, treatments, and follow-ups, both in the US and the UK, add up significantly, especially alongside hospital bills and ongoing infections.

We've hesitated to reach out for support, but with limited options, we're determined to do everything in our power for Zari. Any contribution, no matter how small, would be immensely appreciated and would make a world of difference in supporting our brave little girl, our target amount may change depending on success rate of treatment. ❤️

Money Raised will also tremendously help with things such as a build in water filter system, and a machine to help retrain her bladder after dysfunction from all the infections, and Also help with travel costs to London hospital to be trained to use the machine with follow up appointments which could potentially help Zari.

Following Julys admission resulting in more IV (5days worth) we are currently now facing a very difficult infection once again which is proving hard to determine and treat, this is considerably worrying for us which is what has led us to take the leap in setting this live to have more options.

we are very grateful as a family for your understanding and support!