Life for Liam

Below is a video of a family and their experience with CDH and what Dr. Kay’s was able to do for them!

Two amazing people that I know and love, Matt and Paige Carter, are on an emotional journey right now that no parent should have to go through. Their story is written below and my hope is that you take the time to read it and say a prayer for this family and for this little soul, Liam, who deserves a fighting chance, and this surgeon is going to give him just that. Donations will help fund their stay, living expenses, and time off of work during their transition period to Florida for Liam’s care. Thank you to everyone for all of the love and support. Life for Liam!


“At our 20 week appointment, Matt and I found out something didn’t look right on Liam’s ultrasound. Our OB referred us to Cardinal Glennon to the MFM doctors there. During our first appointment at Cardinal Glennon, we were told that Liam not only had one major birth defect, but two. They said he had an Omphalocele, which is where his abdomen didn’t completely form, causing organs to migrate into his umbilical cord. He also has left sided CDH, which stands for Congenital Diaphragmatic Hernia. This is where his diaphragm muscle didn’t completely form, leaving a space for his organs to also migrate into his chest, causing his heart to be shifted and pressure to be applied to his lungs. Only about 50% of babies with CDH will survive. Considering Liam also has another birth defect, that makes his chances more slim. We were told on June 14th by the Pediatric Surgeon that Liam didn’t have much of a chance to survive and if he did, it was going to be a long uphill battle. Before ever going into our last appointment with Cardinal Glennon, I began to research. I found a Facebook page called Cherubs. I left a comment giving a little detail in hopes for extra prayers for our sweet boy. In return, I had mothers messaging me and telling me about their childrens experiences with CDH. All successfully survived with the help of Dr. Kays and his team of Johns Hopkins All Children’s Hospital in St. Petersburg Florida. Most families had relocated to be under the care of Dr. Kays. I was given contact information and the next day, I was on it. Within less than 24 hours, I received a call from Dr. Kays nurse. She wanted to know all about Liam and what we knew about his case. There have been a handful of children under Dr. Kays care that have had both birth defects like Liam and they survived. Dr. Kays survival rate with CDH in children that require ECMO(the most sick kids), is above 90%. All we want for our baby boy is a fighting chance. A doctor to see hope in him and do all they can to help him survive and thrive. We have found that hope in Dr. Kays. We get to meet him and make our delivery plans July 20th. I will more than likely have to relocate around 35 weeks at the latest, due to me being high risk for preterm labor. We have had such amazing support from our family, friends, and community. We are very blessed and appreciate all the prayers and love from everyone. It means the world to us. Thank you all so much for believing in hope.” - Paige

Lauren Paige Carter (the mother of Liam Carter) will receive the funds from this campaign.