Zolgensma treatment for Arnella Persaeva

Arnella Persaeva is a loving girl less than two years old diagnosed with spinal muscle atrophy (SMA), a rare childhood disorder caused by a defective gene that destroys nerves controlling the muscles. Many children do not survive past two years of age, and those who do lose the ability to walk, eat, or breathe. 

Fortunately there is a lifesaving medication called Zolgensma that has previously restored children with SMA to full health after a one-time treatment. Doctors will not administer the medication if the child is over two years of age and Arenlla's second birthday is in July 2nd. This only leaves a few months for Arnella to qualify for the treatment. If you cannot contribute yourself, PLEASE SHARE this information wherever you can.

At a cost of over $2 million, Zolgensma is the most expensive drug approved by the FDA....and when Arnella's parents received a cost estimate from Nationwide Children's Hospital in Ohio, they felt hopeless. 

Arnella and her parents live in Russia, and while they have initiated fundraising there as well, they are unable to receive health coverage for the drug. Only three hospitals in the US offer the Pediatric Spinal Muscular Atrophy Program: Nationwide Children's Hospital in Ohio, Boston Children's Hospital, and Children's Hospital of Philadelphia. 

While the cost of Arnella's treatment seems shocking, the results of this one-time miracle treatment have proven successful in the past. 

We are certain that if we reach the right amount of people in the next few months, Arnella's life can be saved.

**All donations will be withdrawn by Alan Zangiev and wire transferred to Arnella’s mother, Diana Persaeva.**

About the Zolgensma Treatment 

Follow Arenlla's fundraiser in Russia via Instagram: https://www.instagram.com/arnella_persik/?hl=en