Lilly the Lymphatic Malformation Warrior

Hi, I am the mum of one of the bravest people ever. She is only 4 years old and has been through more in her short life than some people go through in their whole lifetime.

Lilly has a condition called Lymphatic malformation and it affects her face and eye. She was diagnosed at 10 and has had 6 surgeries so far relating to her condition. The past 12 months have been particularly hard for Lilly, she has been hospitalised 5 times, and rushed for emergency surgery as she nearly lost her eye. She has been to more specialist appointments than I can even count and has had several flare-ups that have required medication and antibiotics. The specialist appointments, doctor's fees, and hospital visits, time off work, travel have added up in cost and unfortunately, I have spent over $5000 in medical costs and extras in the past year to make sure Lilly got the best treatment she possibly could.

This year she has more specialist appointments and surgery that will likely be done privately. I am starting a new job (which will be best for Lilly and I in the future), but it will mean I will have no leave, no sick leave and any days off due to Lilly's condition will be unpaid.

I want to ensure I can keep Lilly in the best care and not have to stress about medical bills and the debt I have from the past year's medical bills.

Any help would be greatly appreciated, I am not one to ask for help, but when it comes to Lilly I will do all I can.