Lilly wants to see her favorite bands!

Hi everyone! Thank you so much for being curious enough to click on this page. Lilly is almost 10 and has gotten into some seriously good music! This year, I, her mom, want to take her to see her 2 favorite bands. They happen to be playing in Columbus this summer!

If you’re familiar with her condition, then you may know the disease tends to get worse with age. And if you’re not, here’s a little bit of information. Lilly has RDEB, or recessive dystrophic epidermolysis bullosa. It’s a genetic skin disorder that causes wounds and blisters all over her body, inside and out. Because of the severity of this disorder, she’s had multiple surgeries and has permanent disfigurement.

EB is a life-long disease, and unfortunately causes that life to be shortened.

I want Lilly to experience everything that makes her happy. Music happens to be something she loves, and something she’s capable of experiencing. Please help me in fulfilling a mother’s wish.

If you are able to, please consider donating! We will need help with a rental vehicle, handicap parking, and possibly hotel room. The tickets are being handled.

Thank you in advance!