Lilly's Trip to the Children's Hospital in VA
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Our daughter Lilly is 5 years old, and has a rare disease called Coffin-Siris. We were just given the referral from her geneticist to go to a specialist at the children's hospital in Norfolk, Va. We are very excited to meet the doctor, as she is the top Coffin-Siris doc in the country, and is currently leading a research team to develop new treatments for kids just like Lilly.
We have applied for some grants, but just need a little extra help from friends and family to get us there. Anything you can give would be so greatly appreciated.
We also ask for your prayers. Please be in prayer for traveling mercies, a productive hospital visit, and some good news.
Thank you all so much. With disabled children it really does take a village, and I am so thankful for all of you.
Organizer
Stacey Albin
Organizer
Grandview, TX