Lizzy's Brave Battle

Hi,

 

We are fundraising for a very special young lady called Lizzy who faces her biggest battle yet!

 

Lizzy is 18yrs old and has faced more in her young life than most of us can possibly imagine. Lizzy was born with a genetic condition called Neurofibromatosis type 1 (NF). Unfortunately, Lizzy's NF mutated in the womb causing her symptoms to be much more severe than usual NF patients. Lizzy's NF has sadly caused her to lose her sight and she is now completely blind. This has not stopped Lizzy though. Lizzy has learned Braille, uses a cane to get around and has completed school and her 6th form studies with flying colours. She has recently been offered a place at a college for the blind. She has big dreams and a bright future ahead of her.

 

Lizzy's NF has, over the years, caused her to grow multiple benign tumours or fibroids, which have caused her face and bone structure to become altered and she has needed multiple surgeries (approximately 100) to remove and debulk these tumours, including some complex brain and eye surgeries. Regardless of all of this, Lizzy is the sweetest, happiest young lady. She has a real zest for life and is a true inspiration to everyone lucky enough to meet her.

 

Over Christmas 2021, Lizzy found a new tumour on her jaw which grew very quickly. Lizzy's NF team operated and removed the 10cm tumour in March. This was then sent off and unfortunately found to be a type of cancer. This news has obviously been devastating for Lizzy and her family and, with this in mind, we are asking for your help.

 

Lizzy now needs Chemotherapy and Proton Beam therapy to prevent the cancer from returning. Both these treatments must take place in London which means that Lizzy and her amazing mum, Nicola will need to move to London for the duration of the treatment (probably for 3 months).

 

Lizzy has an amazing family. Nicola (mum) and Gavin (dad) are fantastic people who have worked hard to provide their three children with good lives. They are both very special people who never ask for help.

 

For this fight though, they need help. We, as their friends, are asking for help for them as the financial implications of Lizzy's treatment are extensive. Travel to and from London is expensive. Gavin and the boys will need to travel there regularly to spend time together as a family and to support Lizzy. The costs of eating in London along with the travelling to and from hospital for the daily treatments will also mount up. Fortunately, the hospital are providing Nicola and Lizzy with accommodation for the duration of Lizzy's treatment.

 

Lizzy will also sadly lose her hair as a side effect of the treatment. She is obviously concerned about this as any 18yr old girl would be. For this reason, we would like to raise money for Lizzy to be able to have a wig custom-made, as an off-the-shelf wig won't be suitable due to Lizzy's head shape. As ever, Lizzy is showing her style and is requesting a fabulous, pink wig. Custom-made wigs are expensive, costing around £1000 to get one, which is just a huge amount for a family to find.

 

With all the stress and worry already on Lizzy and her family, we would like to help take away the financial worry - this is where you amazing lot come in..... Please donate to our amazing Lizzy and her family so she can have a fabulous wig and so her family can concentrate on getting Lizzy better.

 

Any donation will be greatly appreciated and we know that Lizzy will love to read your messages of support as she takes on this battle.

 

Thanks so much,

Liz and Hev xx

PS. If there are any funds left after Lizzy's treatment, we hope that Nicola & Gavin will spend it on a holiday to recover as a family.