BRAINS SHOULDN'T BLEED !
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Lleyton Reece's Story
SHARING this link IS CARING
On 18 Sept 2017 Kathryn's 17 year old son Lleyton suddenly and unexpectedly suffered a devastating stroke at school (resulting in a Grand Mal Seizure) one week prior to his HSC exams, due to a rare tumour.
He was rushed by ambulance to hospital where doctors needed further opinions on how to treat Lleytons bleed.
As a result of this stroke, the bleeding in his brain affected the parietal lobe, he lost his ability to speak, comprehension, writing & ability to understand any language along with many other nasty symptoms.
-This was a confronting life changing event for such a young man, just weeks away from his 18th Birthday.
Professor Charlie Teo was called and medicated Lleyton that day, just 8 days later performed life changing brain surgery in the very delicate parietal lobe, Professor Teo telling Lleyton and his mum that "if it was to bleed again the affects would be irreversible "
in a bid to remove the unusual tumour, before further bleeds happened.
This life saving necessary surgery for the rare tumours cost $47,000 which she borrowed from family & friends, as well as draining all of her own financial resources.
This surgery was very successful, though unfortunately, at Lleytons 6 week check up, Professor Teo found a second tumour (see photo) which is ten times the size of the original tumour and is located between the brains two hemispheres.
Professor Teo has recommended further surgery before this tumour begins to bleed in the brain -causing devistating affects(within the next 6 months or before).
Kathryn is a single mum of two boys, both having challenging issues, (one special needs), has exhausted all funds and is unable to ask friends and family to help her again
- however she desperately wants to pay for her sons surgery and give him the opportunity of a long and happy life, as the new tumor will bleed "it's just a matter of time" according to Professor Teo.
Lleyton is a very shy, musically talented student and has offered to "pay it forward" by helping out at brain cancer fundraising events in the future. The family are active supporters of other local charities.
Kathryn only wants to fund the operation - any excess funds will be donated to the Charlie Teo Foundation.
We, the Far Kew Community, believe we can rally enough support for Kathryn & Lleyton and encourage everyone to donate just a small amount and share this link, to help this most deserving family in their time of need. Thank you
www.charlieteofoundation.org.au
cavernoma or cavernous malformation is a vascular abnormality of the central nervous system. It consists of a cluster of abnormal, dilated vessels. Pathologically, it is red to purple in colour, appearing as a raspberry. Cavernomas contain blood products at various stages of evolution.
multiple cavernous malformation syndromes are where the number of multiple lesions is typically 5 or more, and suffering individuals usually present with seizures and/or focal neurological deficits due to recurrent hemorrhages.
Complete removal of the lesion including hemosiderin ring is required to avoid further recurring hemorrhagic events and complete seizure control.
The procedure is usually followed by postoperative MR within 72 hrs for any rebleeding event in which case surgical intervention is warranted.
SHARING this link IS CARING
On 18 Sept 2017 Kathryn's 17 year old son Lleyton suddenly and unexpectedly suffered a devastating stroke at school (resulting in a Grand Mal Seizure) one week prior to his HSC exams, due to a rare tumour.
He was rushed by ambulance to hospital where doctors needed further opinions on how to treat Lleytons bleed.
As a result of this stroke, the bleeding in his brain affected the parietal lobe, he lost his ability to speak, comprehension, writing & ability to understand any language along with many other nasty symptoms.
-This was a confronting life changing event for such a young man, just weeks away from his 18th Birthday.
Professor Charlie Teo was called and medicated Lleyton that day, just 8 days later performed life changing brain surgery in the very delicate parietal lobe, Professor Teo telling Lleyton and his mum that "if it was to bleed again the affects would be irreversible "
in a bid to remove the unusual tumour, before further bleeds happened.
This life saving necessary surgery for the rare tumours cost $47,000 which she borrowed from family & friends, as well as draining all of her own financial resources.
This surgery was very successful, though unfortunately, at Lleytons 6 week check up, Professor Teo found a second tumour (see photo) which is ten times the size of the original tumour and is located between the brains two hemispheres.
Professor Teo has recommended further surgery before this tumour begins to bleed in the brain -causing devistating affects(within the next 6 months or before).
Kathryn is a single mum of two boys, both having challenging issues, (one special needs), has exhausted all funds and is unable to ask friends and family to help her again
- however she desperately wants to pay for her sons surgery and give him the opportunity of a long and happy life, as the new tumor will bleed "it's just a matter of time" according to Professor Teo.
Lleyton is a very shy, musically talented student and has offered to "pay it forward" by helping out at brain cancer fundraising events in the future. The family are active supporters of other local charities.
Kathryn only wants to fund the operation - any excess funds will be donated to the Charlie Teo Foundation.
We, the Far Kew Community, believe we can rally enough support for Kathryn & Lleyton and encourage everyone to donate just a small amount and share this link, to help this most deserving family in their time of need. Thank you
www.charlieteofoundation.org.au
cavernoma or cavernous malformation is a vascular abnormality of the central nervous system. It consists of a cluster of abnormal, dilated vessels. Pathologically, it is red to purple in colour, appearing as a raspberry. Cavernomas contain blood products at various stages of evolution.
multiple cavernous malformation syndromes are where the number of multiple lesions is typically 5 or more, and suffering individuals usually present with seizures and/or focal neurological deficits due to recurrent hemorrhages.
Complete removal of the lesion including hemosiderin ring is required to avoid further recurring hemorrhagic events and complete seizure control.
The procedure is usually followed by postoperative MR within 72 hrs for any rebleeding event in which case surgical intervention is warranted.
Organizer
Eley Hooper
Organizer
Ingleside, NSW