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Help for life sustaining infusions

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This is not the way I planned life to turn out.  I have always been the strong one and I would like to be that again.  Two years ago, my son passed away of a neuromuscular disease he fought his entire life, but  I made sure he lived his bucket list.  Insurance was hard to get for a terminally ill child. Consequently, it took all I had to bury him.  Six months later, I found myself fighting for my own life.  Hospitalized 15 times in one year with several surgeries and transfusions.  I don't mind the suffering and if it is close to my time on earth to end, I am okay with that.  I just do not want to leave my family in the position I am in since my sons death.  My illness, short bowel with malabsorption and astateria caused me to not absorb nutients anymore.  The docs inserted a port so that I may have TPN (nutrition through the port) to keep my numbers high enough for survival.  I require at least one more surgery, however, the numbers are not coming up enough for that yet.  I have been referred to a multi organ transplant team. This is all backlash from cancer treatments, which I survived.  I am just trying to help pay for my co-pays for the nutrition so I can continue to get stronger for surgery.  My son fought his entire life, I do not have right to give up.  Any help would be appreciated.  Thank you for your consideration. Adding up the copay comes to $13,000 yearly. I am naturally, on Social Security, which means it costs more than I get. I am only trying to catch up so I can continue health care. Not trying to make money. Prayers would be appreciated also. I know some of my photos don't look ill, but at many events I spent the time sick in the bathroom. Makeup and a wig can transform anything. You also need to smile through the storm. I'm not asking to stop the storm, just to help me lighten the rain.

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Donations 

  • Michelle Smith
    • $25
    • 9 yrs
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Organizer

Carol Plaia Geraci
Organizer
Mandeville, LA

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