Logan (Fibrous Dysplasia-Rare Bone Disease)

Logans Story

At age six, he was diagnosed with a rare bone disease called Fibrous Dysplasia in April of 2021. Fibrous Dysplasia is a rare bone disorder in which scar-like tissue grows in place of normal bone. His case has affected the left side of the cranium, Which has affected the entire left side of his face. There was never an indication of something being wrong with Logan. As far as his Mother and family doctor were concerned, he was a happy and healthy kid. At the beginning of 2021, when the pandemic peaked, Logan developed major headaches daily. He didn't like going out when the sun was shining and always wanted to stay in. His Mother didn't know that the sun played a significant role in the pain he was experiencing and his sensitivity to the scar tissue. When researching the disease and its rarity and being passed from specialist to specialist, we were informed that there was NO cure for my son's disease and that surgery was the only means of relief. For any mother, that is a devastating blow. Since being diagnosed in early 2021, Logan has undergone two intense surgeries and is predicted to go through many more throughout his life.

Courtney's goal as a mother is to raise awareness of this disease and work towards finding a solution to ease the suffering of those living with it. To help achieve this, Logan's family is accepting help and donations to pay for research studies, medical bills, travel expenses, and meals. This aims to provide financial relief while raising awareness about supporting those in need.

Thank you and God Bless!