Logan’s Heart Transplant

If you know Logan you know he’s an awesome lil guy who loves everyone. Caring, sensitive and has amazing comebacks! He’s 13, in heart failure with a rare genetic condition. AARS2 gene mutation. It’s 100% fatal, he’s only the second person in the world to survive past infancy. All others are diagnosed as infants and pass by their first birthday. He’s currently on the heart transplant list, priority 1A. He’s also autistic and has been a fighter his entire life. Logan’s journey started in November with vomiting, a chest x-ray and a diagnosis of viral cardiomyopathy at Hershey Children’s. He was given IV IG which did not help and he was airlifted to CHOP (Children’s Hospital of Philadelphia). After the exam there it was decided he needed an LVAD as his heart was only pumping at 10% and had we waited he wouldn’t have made it. After the LVAD was implemented and after genetic testing Logan was diagnosed with AARS2 gene mutation which caused the heart failure. The LVAD is a stop gap to get him to transplant. Without a transplant his heart will continue to fail. This disease is 100% fatal. We are hoping to be able to raise some money to help offset the cost of the transplant as well as the travel costs. Logan is not currently in the hospital but we could get the call any day. Prayers are also appreciated. Thank you.