London Hyrox for Myah's SMA Type 2 Journey

My name is Alex Yoxall and I will be running London Hyrox to raise funds for our family Craig and Danielle's daughter Myah - who was diagnosed with SMA Type 2 last year.

On the 2nd August 2024, Myah was diagnosed with SMA Type 2 (Spinal Muscular Atrophy). SMA is a genetic neuromuscular condition that causes muscle weakness and wasting due to the loss of motor neurons. It is a degenerative disease if left untreated.

Without treatment, this causes her muscles to weaken over time effecting the ability to sit up, crawl or walk along with other body functions

Myah started treatment just 6 days after her diagnosis and will continue to need treatment every 4 months for the rest of her life as without it she would continue to deteriorate.

To be able to reach her full potential, Myah will need specialist physio every week costing in excess of £110 per session, regular hydrotherapy, home adaptions and equipment along with other support all which comes at quite a cost. There are also intensive therapy courses that Myah could hugely benefit from which costs around £4,000 each time.

If I achieve nothing more than spreading awareness of the disease, I'll have succeeded - but I want to help as much as I can.

Please donate if you are able and check out their Instagram page which is detailing Myah and her journey - @myah_sma