Love for Esang, a tetra-amelia syndrome patient
Donation protected
Hello everyone, I am Jasmin Verushka Via Jamias. Someone knocked at my heart for help but despite my heart's desire to help, I just lack the resources at the moment. So please let me knock at your hearts in behalf of her. Jessamine Sagun Samalio or simply known to close friends and familes as Esang was born on December 15,1989. She was born with one of the rarest disorder Tetra-amelia syndrome , characterized by the absence of all four limbs. But despite such fateful condition, she remains a constant source of happiness to the family as she is naturally bubbly and exuberant. Esang extraordinarily exudes happiness amd goodwill to the whole community. She is blessed to have survived this long as most people with such condition either are stillbotn or die shortly because of so many serious medical problems brought about by the syndrome. In hope to reciprocate the smiles she brings to people around her, we wish to give her a little comfort by letting her have extra freedom of movement thru a pediatric motorized wheelchair. and some accessories like anti-slip restraint belt , wheelchair tray and other adjustable wheelchair safety harness. However, these do not come cheap and so I organized this fundraiser to bring people together with good hearts to help each other out to show our love to Esang.
tetra-amelia syndrome: https://rarediseases.info.nih.gov/diseases/5148/tetra-amelia-syndrome
Fundraising team (2)
Jasmin Verushka Via Jamias-Ramboyong
Organizer
Chicago, IL
Maia Alanna Louise Caletena
Team member