Love for Violet, Support for the Vamoses

My name is , Natalia, and I’m fundraising for my cousin’s family, Megan, Chris, and Violet Vamos, after a devastating diagnosis. Violet was born a seemingly healthy baby girl. However, at 6 months of age, Megan noticed a twitch in Violet’s eyes. By 9 months of age, Megan started to notice more symptoms such as, her head drooping, very low muscle tone, and Violet not bearing any weight on her feet. At this point, they began extensive testing which ultimately lead to a diagnosis of Rett Syndrome. Rett syndrome is a rare genetic neurological and developmental disorder that affects the way the brain develops, causing a progressive loss of motor skills and speech. There is no cure for this disease, therefore treatment is directed towards improving function and addressing symptoms. A multi-disciplinary team approach is typically used to treat the person throughout life. This team may include a primary care physician, physical therapist, occupational therapist, speech-language pathologist, nutritionist, and support services in academic and occupational settings. Over a lifetime, these costs can be debilitating to a family.

I have no doubt that the Vamoses will do everything in their power to make a beautiful life for Violet. Please consider donating whatever you are comfortable with, all will go to help offset lifelong costs for this family.

To learn more about Rett Syndrome, please click the link below.

https://www.rettsyndrome.org/