Hope for Lucian Hill

http://wics.com/news/local/family-of-boy-with-rare-illness-facing-financial-struggles ‌Lucian was diagnosed at birth with a rare birth defect called  esophageal atresia tracheoesophageal fistula and down syndrome. He had a esophageal dilation every week for a solid year and has had numerous surgeries and procedures and we are constantly fighting pneumonia now due to these issues. Up until September 2015 he had done pretty good and stayed fairly healthy for the occasional cold or sinus infection in the winter. Recently he had a gastric emptying study done that showed that his stomach is basically is no longer working. He has multiple esophageal strictures and esophagitits. He needs his thal fundoplication redone and a Pyloraplasty. He also has friabilty in his gastric fundus . He is no longer able to attend his regular school and is home schooled due to his illness. His up coming care is going to involve traveling out of state to different appointments. He went to minnesota in October and it was said that they suspect lucian has a h type fistula or laryngeal cleft that will need to be fixed and  re do of his thal fundoplication and a Pyloraplasty.  The surgeon in minnesota has said he will gladly take care of lucian as long as  arrangement of  payment can be made . Illinois medicaid approved the referral but when they got their they found out that Minnesota doesnt except illinois medicaid. And the amount of money to go their is unreal and lucian  doesnt have alot of time to wait as things are getting more complex. He has had many denials to different specialist by our insurance and for medications. Now lucian my finally be getting some where. We are  trying to  raise money for ohio because lucian has been excepted their. They are just limited on what all can be done do to funding.  Lucians quailty of life has been drastically reduced due to needing these surgries, additional testing and medical specialty clinics and specialist we don't have here.
In December lucian's mom started slowly adding supplements and lucian slowly started improving for the exception of the surgical aspect of everything. But he's been able to gain weight his color has looked better, he's been happier, started using the toilet regularly. Right now he is on over 30 supplements a day. The cost of this alone is unreal. But everyone is  hopeful that when his little body doesn't have to fight to heal it's self as much he won't need all of it .Lots of speculations and no answers until we get to the right place. Please help us get to the right place.  If one person donates 2 dollars and then ask a friend to donate 2 dollars and it continues on we could reach our goal in no time. 
 This is set up to raise as much money as possible for a down payment so that we can proceed with surgery and then make payments. Lucian has been through more in his little 8 years of life than most adults. This is just a very small portion of a few things that he has gone through . He has a long road ahead.  He deserves to be able to live happy and healthy and not to have to be fed through his small intestines 24 hours a day while carrying around a heavy backpack. He wants to eat orally and is being held back. Please share our story. Keep lucian in your thoughts and prayers. Esophageal atresia tracheoesophageal fistula is a 1 in 5,000 live births. We need more awareness of this birth defect.